[tri-med] Re: was no subject, now diaphragmatic hernia at birth
- From: "Kathy Hendler" <misskathy2@xxxxxxxxx>
- To: <tri-med@xxxxxxxxxxxxx>
- Date: Tue, 19 May 2009 05:50:05 -0400
My son has Trisomy 18 Mosaic and had a diaphragmatic hernia at birth. We
went to Ochsner Hospital in New Orleans because they have an ECMO (baby
heart lung machine) but he was only 2 1/2 lbs and had to be 4 lbs to use it.
The doctors waited 3 days before doing surgery. He stayed in the hospital
for 4 1/2 months, then on oxygen for 18 months. He is now 17 years old and
doing well. He walks, talks, and talks back. LOL
I will be glad to answer questions about it if I can.
Kathy - Mom to David (T18M, age 17 years)
>My unborn son has been diagnosed with trisomy 18 and a congenital
diaphragmatic >hernia and I have been told nothing can be done, he will not
be incubated to keep >him alive and there is no hope. I can find no details
of similar cases and wondered if >anyone could give me any information.
Many Thanks
Denise
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line
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