[tri-med] update on Annie

Hello friends,
I am telling Annie's story at the University of Toronto's Joint Centre for 
Bioethics on June 11th.(announcement below) I will also be presenting a poster 
at the Seattle Children's Ethics conference. The theme this year is Ethics and 
Genetic Testing. The director of ethics, Dr. Ben Wilfond, is the author of the 
paper "Lethal Language, Lethal Decisions" which addresses the fact that tri 
13/18 are not always lethal conditions but that the language of lethality is 
used to define a quality of life decision. 

I hope that all of these endeavors ultimately lead to improvements in the 
non-judgmental provision of care for our special children. 

Barb  
Annie's mom May 25, 2005- Aug 12, 2005. 




 



First Annual Sue MacRae Lecture

On Ethics and
Patient-Centred Care

 

(THIS SEMINAR WILL ALSO BE WEBCAST)

(http://epresence.ehealthinnovation.org/epresence)

 

 

?Making Tough Decisions Together:  A
Family?s Perspective of the Vital Importance of Ethics and
Patient-Centred Care?

 

 

Barbara Farlow, BEngSci, MBA

Member,
Patients for Patient Safety Canada

 

Wednesday, 11 June 2008, 4:10 ? 5:00 pm

 

University
 of Toronto
Joint Centre for Bioethics

88 College St.,
Great Hall

Abstract:   Following
the tragic death of a loved one, a family seeks healing by struggling to define
ethics and patient centred care and by attempting to understand why there seemed
to be an absence of both in their circumstance.  The lecture is an account
of a journey of trying to affect improvements in ethics and patient-centred
care, especially in situations pertaining to end-of-life and quality-of-life
valuations.  

Admission Free   -   No Registration
Required

 

 

*************************************************

Rhonda
L.F. Martin

Executive
Assistant to Dr. Ross E.G. Upshur,

  
Director, University
 of Toronto Joint Centre
for Bioethics

Administrative
Assistant to Dr. Jennifer L. Gibson,

  
Director, Partnerships & Strategy

University
 of Toronto Joint Centre
for Bioethics

88 College Street

Toronto,
 Ontario

M5G
1L4

CANADA

( Tel:  416-978-1906

9 Fax: 
416-978-1911

8 E-mail:  rhonda.martin@xxxxxxxxxxx

Website: 
www.utoronto.ca/jcb

*************************************************

 

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