[tri-med] update

Today was a good day for Morgan. When we arrived at the hospital this
morning the docs told us that his xrays today were much better than the
ones from yesterday. They were also happy to report that his lungs
sounded much clearer, he actually had some air movement. All his lab
work continues to be good so it is just a matter of clearing the
pneumonia out of his lungs. The culture they sent out on Sat. grew a
bug that is common in pneumonia so they know how to fight it, continue
the current antibiotics. 

He had one tiny step forward today.
In the afternoon the dr. decided to turn off the paralytic he was on.
The paralytic keeps him still while on the vent so the vent can do all
the work. Once the paralytic is off Morgan can move again. He remains
sedated, but he did turn his head to our voices several times and he
tried oh so hard to open his eyes. But, they are so heavy, he just
couldn't quite do it. This is a good step in the right direction. His
main nurse thinks he will probably remain on the vent for a couple more
days as they don't just turn it off, but have to wean him off. I have
no idea how long we will be in Jackson, MS. I want to go home.

?You have no right to argue with your Creator. You are
merely a clay pot shaped by a potter. 
The clay doesn?t ask, ?Why did 
you make me this way??? (Isaiah 45:9 CEV).



Holly ( Des Moines, IA) -- wife of Mike 
mom of Morgan (11 yrs. old) unbalanced translocation resulting in partial t18q 
and partial monosomy 9p 
dx'd with type 1 diabetes 03-17-08, enjoying the honeymoon--injecting levemir 
twice daily,novolog




                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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