[tri-med] Re: tube feedings and seizures

 Aleah was dx with Infantile Spasms at almost 5months of age. We treated her 
agressivelly with ACTH and then oral keppra for 2 years, she became seizure 
free shortly after starting ACTH and shes remained SF since.
 Rachael mom to Jeremiah, ALeah and Lily
Rachael Larson
> From: tammiebqueen@xxxxxxxxxxx> To: tri-med@xxxxxxxxxxxxx> Subject: [tri-med] 
> Re: tube feedings and seizures> Date: Fri, 28 Mar 2008 20:11:22 +0000> > 
> Sharon. > > My son started off slow with his feedings and slowly increased. 
> He did ok at first but did reflux and we would slow it back down but we were 
> afraid he was aspirating and he was. So we ended up having a 
> nissan(funduplication) where they can not throw up. After that no problems. 
> When they get a g-tube it changes the shape of the stomach and they can then 
> start having reflux..> > Tammie > > > Date: Fri, 28 Mar 2008 12:19:23 -0400> 
> > From: debbwebb@xxxxxxxxx> > To: tri-med@xxxxxxxxxxxxx> > Subject: [tri-med] 
> Re: tube feedings and seizures> > > > I can't help you with the feeding 
> issue, but Claire did have seizures before> > she was one year old.> > 
> Debbie, mom to Claire (T18)> > > > On Fri, Mar 28, 2008 at 12:45 PM, 
> <SHAMOND73@xxxxxxx> wrote:> > > > > i have 2 questions i have been meaning to 
> ask,> > >> > > (1) for anyone whose child has seizures now, did they first 
> start having> > > those seizures after 1 years old, or did they start 
> earlier, when was> > > their> > > first sezure??........> > >> > >> > > (2) 
> Jason is now feeding well on the feeding tube on a speed of 120ml hr,> > > 
> that is 4 oz an hour, so to get 6oz takes an hour and a half. he does this> > 
> > 4x a> > > day. When he is feeding at 150ml hr, which is 5 oz an hour, he 
> is> > > refluxing,> > > at this current very slow speed he is doing (fingers 
> crossed) very well.> > > i am> > > so pleased and happy.> > >> > >> > > At 
> night, he gets the 25-30ml an hour super slow overnight feeding, but 4x> > > 
> during the day he is having a feed at the 120ml hr, and i was wondering if> > 
> > anyones else child started daily feeds so slow like this, or still has> > > 
> daily> > > feeds like this, or was able to speed it up over time 
> ??..............> > >> > >> > > Thanks,> > > Sharon> > >> > >> > > 
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