[tri-med] Re: tube feedings and seizures

I can't help you with the feeding issue, but Claire did have seizures before
she was one year old.
Debbie, mom to Claire (T18)

On Fri, Mar 28, 2008 at 12:45 PM, <SHAMOND73@xxxxxxx> wrote:

> i have 2 questions i have been meaning to ask,
>
> (1) for anyone whose child has seizures now, did they first start  having
> those seizures after 1 years old, or did they start earlier, when was
>  their
> first sezure??........
>
>
> (2) Jason is now feeding well on the feeding tube on a speed of 120ml hr,
> that is 4 oz an hour, so to get 6oz takes an hour and a half. he does this
> 4x a
> day. When he is feeding at 150ml hr, which is 5 oz an hour, he is
> refluxing,
> at  this current very slow speed he is doing (fingers crossed) very well.
> i am
> so  pleased and happy.
>
>
> At night, he gets the 25-30ml an hour super slow overnight feeding, but 4x
> during the day he is having a feed at the 120ml hr, and i was wondering if
> anyones else child started daily feeds so slow like this, or still has
> daily
> feeds like this, or was able to speed it up over time ??..............
>
>
> Thanks,
> Sharon
>
>
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> Home.
> (
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>
>
>                  Building ___ooOOoo__ Rainbows
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>


-- 
Sleep is for Pansies.

Faith sees the invisible, believes the incredible and receives the
impossible!
If you want the rainbow, you gotta put up with the rain.
Patience and Persistence - keys to raising children.


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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