[tri-med] Re: trisomy ignorance thread

----- Original Message ----- 
From: "Karen" <karens@xxxxxxxxxxxxxxxx>
Its usually obstetricians who request genetic testing during
> pregnancy, and its they who give the results and encouragement one way or
> the other. But how often would they see ANY of their patients after they 
> are
> born? Unless of course the mother has another child and uses the same
> doctor......

Exactly!
I had this discussion with a friend of mine who works in an OB/Gyn's office 
approx. 6 months ago. They'd recently had a patient with a amnio dx of 
trisomy 18. I discussed 'stuff' regarding that (you all know the details) 
and asked if the drs in the practice give the patients any info such as SOFT 
etc.
My friends reply, "No, because those babies don't live so the drs always 
tell them to terminate". I also asked if they send the patient to a 
geneticist and they never ever do.

AAARRRRGGGGHHHHH
You know what? I tried to put a face on the whole thing with Alex but she 
just didn't get it!!!

Michelle mom to Alex (18, partial trisomy 14 mosaic) and Molly (15)
MichiganUSA 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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