[tri-med] Re: trisomy baby

Again, we are in Southern Cal...Orange County area. Our son Matthew was
diagnosed with Trisomy 18...

I am happy to give my phone number!


Ruth, wife to Rudy, mom to Brendon (24), Scott (20), Joshua (17), Matthew
(09/13/01-10/24/06), Rudy (3 1/2) & Alyssa (18 mo.)

http://members.cox.net/t18mom/Matthew%20Web.shtml

Character cannot be developed in ease and quiet. Only through experience of
trial and suffering can the soul be strengthened, ambition inspired, and
success achieved. ~Hellen Keller




-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] On
Behalf Of Fawna Lockwood
Sent: Saturday, July 12, 2008 1:39 PM
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] Re: trisomy baby

>My sister gave birth to a Trisomy 18 baby on July 2 2008 . he has 2 holes i
>his heart and is on a ventilator since birth.  The doctors have given up on
him
>but we cannot.  We live in southern California and don't know where to turn
to
>get medical help for him.

Lalitha,

Where in Southern California?  There are several of us in the San Diego
area, some with full, some with other conditions, and we all use/used Rady
Children's Hospital.  Dr. Grossfeld, one of their ped cardiologists, has a
special interest in children with chromosomal abnormalities.  He is
currently
my daughter's cardiologist, and treats the child as opposed to the syndrome.

Fawna, Research coordinator TRIS Project, mom
to Thom & Rhonda, Lara, & Philina 25yrs (PT6p
& Moya Moya Syndrome), Escondido, CA USA
http://home.mindspring.com/~fawna33/





                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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