[tri-med] Re: trisomy 8 mosaicism

 
In a message dated 2/22/2006 12:37:37 A.M. Pacific Standard Time,  
basil1_2000@xxxxxxxxxxx writes:
missing  corpus callosum, eye opacity,


Hi Katy and welcome to our group!
I am Laurie. I have 3 girls with  special needs and a son that is 
'normal'....whatever that is? lol
 
My 7 year old is also missing her corpus callosum. I still don't know how  
that affects her though. We adopted her a year ago, so I am still learning 
about 
 her. I get so frustrated with having so little information on her 
disabilities,  but then have to remember she is very 'new' to me!
She also has Septo Optic  Dysplasia..........is that what your son has?  They 
say her optic nerves  are very blond??
 
I also have a 17yr old daughter with Trisomy 9p. She has many skeletal  
issues....one of them being osteoporosis.
 
Maybe we can talk and bounce idea's off one another. I am a foster parent  
with another adoption in process....actually wrapping up tomorrow, so do not 
get 
 on the computer as much as I would like!
 
Maybe my life will slow down one day?? .....probably wishful thinking!  lol
 
Again, welcome!
 
Laurie


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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