[tri-med] Re: trisomy 18 suspected

Thanks Tracey - all of this support is really appreciated - it is what is
getting me through

> What sort of support are the drs giving you?

Not great, but we have this on our side ... we don't ACTUALLY have a t18/t13
diagnosis yet - all we know is that there are multiple abnormalities and
that they are most commonly seen together in babies with trisomy 18 or maybe
13.  SO, since they don't officially know (and we won't have the amnio,
which is really bugging them, I think!) ;-) they have to still do everything
possible for our son! <LOL in triumph>

Have you thought
> about the birth and how it will happen?

We are in the process of thinking it through.  I had a completely natural
homebirth with our daughter which was wonderful.  So far we've decided that
the baby should be born at Mount Sinai hospital (which is the big
obstetrical hospital in Toronto, and is across the street from the Hospital
for Sick Children) so that we are close to whatever medical help myself and
Jeremiah need.  Beyond that, we're still trying to figure out.  I would
prefer not to have a c-section, as I've already had 13 operations and feel
that is enough for any human being, but I suspect if Jeremiah went into
distress I'd say "c-section now!!!!"  I still have some time to make the
decisions, but the doctors want me to bring a birth plan with me when I go
in three weeks (I'll be 27 weeks - they figure since I've had a bit of
polyhydramnios I may go early) so I will be asking lots of questions about
births in the next few weeks.  Any suggestions would be appreciated.

We are here for you and hope that
> we can make things just a little easier for you.
> Is the VSD the only heart defect detected?

Yes - and I am told its one of the simplest to deal with.  We do have
another echocardiogram scheduled for the end of May to see if anything else
shows up (they said Jeremiah might be to small at 23 weeks to see
everything).  They did say it was large, oh, and that the flap of skin
leading to the right aorta was thickened, but functioning well.  So we shall
see.  This and clubfoot are the only 'hard' diagnoses we've had - everything
else is just 'soft' signs, so who knows what we'll really end up with.

Thanks to everyone for your welcome and support!

Heather
wife to Trevor
mommy to Kaitlyn (19 months) and Jeremiah Edward (due August 13th)


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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