[tri-med] Re: trisomy 18, omphalocele

Hi Joel...Becky :o}
Welcome to the family although I'm sorry you have reason to be here. My name
is Penny and my husband is Joe...we have 2 sons...an almost 12 yr old
(Nicholas) and a 7 year old (Devon). Devon is my reason for being on this
list..he has Full Trisomy 13 w/balanced translocation 5 and 13.
I don't have any first hand knowlege about omphaloceles...but my advice
would be to gather as much information as you can (from more than one
source) and make an informed decision that works for your family.  I'm sure
that's why you're here and I know there are at least a couple people that
will have some helpful information. Obviously...the kind of care you choose
for your daughter (have you a name picked out for her?) is a very personal
decision for you and your wife. I know this isn't an easy time for
you...please know that I care and I hope you'll find some answers to help
you through.
Love,
Penny...devoted wife to Joe and "Mom" to Nick (11 1/2 yrs...lover of Harry
Potter, Pokemon, Fishing, Legos, Zelda, Popcorn Chicken, Pizza, cheese
sticks and chocolate icecream w/ovaltine sprinkles) and "Mommy" to Devon
(AKA-Stinky Boy, The Chief or Devonrude...Lover of Bear, Elmo and the
Muppets, Stuart Little, Barney, Blue, Pooh and Co. and food in general, 7
years old (6-15-95) !!! Full Trisomy 13 w/balanced translocation 5 and
13)... KC (the feline child...Brat gained her kitty wings 7-09-02 she was 16
years old +), Snitch and Lil' Dude (Nick's turtles :o)
:o) DeLand, Florida
Meet our family at http://www.trisomyonline.org/victor.htm  (Compliments of
my dear friend Karen!
And last but not least, check out the homepage I made!
http://www.geocities.com/penvic4/Penny_sPage.html
The stone that was rejected by the builders, has become the cornerstone
(Psalm 118)

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: