[tri-med] Re: trisomy 18, omphalocele


 >>>>>>>>..On delivery, the doctors are recommending "comfort care" for the
baby.  Any suggestions, recommendations, or words of wisdom would be
appreciated. <<<<<



welcome Joel and Becky, so sorry that you need to be here but glad you found
us. where do you live? in the states, Canada or?  My reason for being here
is my daughter Rebecca who has trisomy 18 moasaic and is 11 years old.  I
did not have prenatal diagnosis so we did not face these tough decisions
before she was born.  We have not been overly aggressive with Rebecca and we
at the time felt we were bringing her home to die.  we have not had to make
decisions re surgery that are life and death though.  only you can make the
decision as to what to do. its a hard decision so listen to your heart

Never give up on anybody.  Miracles happen every day.

Susan mom to Rebecca trisomy 18 m  11! and Mark ADD/LD  10!
Ontario, Canada

http://www.geocities.com/rainbowkaz/hardy2001.htm

hardyboys@xxxxxxxxx



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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