Thanks Jude~ -----Original Message----- From: Judith Wolpert <jfwolpert2@xxxxxxxxx> To: tri-med@xxxxxxxxxxxxx <tri-med@xxxxxxxxxxxxx> Date: Wednesday, October 30, 2002 9:55 PM Subject: [tri-med] Re: trisomy 18, omphalocele i think that is a super well written birth plan. wish mine was like thaT! jude, mom to derek-16, kelsey-14 and kameron-5-full trisomy 18 golden, colorado usa http://chromosome18.org/stories_trisomy.htm#Wolpert http://www.trisomyonline.org/wolpert.htm ----- Original Message ----- From: "loganfamily" <loganfamily@xxxxxxxxxxxxx> > Birthing Plan for Pat, Chris, & Mari Logan > > Chris' Care: > ? Chris would like the best combination of medication that will provide > adequate relief, but not make her drowsy. She wants to be with Mari and > help make decisions. > > ? We do NOT want Dr. Guy to do a C-section. (We eventually unhooked the > fetal monitor, because her heart rate dropped at each contraction. The > delivery nurse was FREAKED out that we chose not to have a C-section.) > > Mari's Care: > ? We would like Mari to be baptized immediately after birth. > > ? Mari should be treated like any other baby with the goal of her leaving > NICU (Neo-natal Intensive Care Unit) and going home. She should be treated > like she is going to LIVE. > > ? We don't want Mari's life to be sustained artificially (i.e. ventilator, > etc.) If it becomes apparent that there is nothing more to be done, we want > her to spend the remainder of time with us. We want Mari's siblings to be > present as well. > > ? Pat & Chris want to be a part of ALL DECISIONS that affect Mari. We would > like our pediatrician, Dr. Robert Reinhold to be involved in decisions for > Mari's care as soon as is practical. (I was frustrated that the NICU nurses > automatically gave Mari an NG feeding tube, before seeing if she was strong > enough to take a bottle.) > > ? Pat & Chris want to be able to hold or touch Mari as much as possible > before she goes to NICU. > > ? Pat would like to stay with Mari with her as soon as she is born and go > with her to NICU. Chris wants to go straight to Mari as soon as she can > after the birth. > > ? We would like to videotape Mari & take pictures immediately after birth. > We would like to have assistance if a family member is not available. > > ? We ask that Mari (Mar-ee) be called by name. > > Okay, this has been far too much. But I do hope some part of this helps > even a bit as you work out together, the best plan for your family. --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.408 / Virus Database: 230 - Release Date: 10/24/02 Building ___ooOOoo__ Rainbows www.trisomyonline.org Families Helping Families On-line Building ___ooOOoo__ Rainbows www.trisomyonline.org Families Helping Families On-line