[tri-med] trisomy 18, omphalocele

Hello, 

My name is Joel and my wife is Becky.  We have three children
ages 8, 6, 3.  We are expecting the fourth girl on January 4, 2003.

The pregnancy is at 29 weeks, diagnosed with an omphalocele.
The genetic testing shows a full trisomy 18.

We decided to carry the baby to term, although my wife usually has big babies, 
and we will probably induce a week early.  The pregnancy is being managed with 
my wife's health in mind.  On delivery, the doctors are recommending "comfort 
care" for the baby.  Any suggestions, recommendations, or words of wisdom would 
be appreciated.  

Thanks.

 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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