[tri-med] Re: [tri-mosaic] Re: [tri-family] having kids


----- Original Message -----
From: "Karen Schuler" <karens@xxxxxxxxxxxxxxxx>


> There are two ways of looking at this and I am not sure which one you mean
> so bear with me and I will try and answer it both ways without getting
> technical or controversial.

As the mom of a higher functioning mosaicer this is a topic that creeps into
my mind and heart at times.

Depending on the day and how Alex is doing I have different feelings and
thoughts on this topic. Alex says he wants to get married and have children
yet he can't remember the facts about the birds and the bees that he and Jim
had last year. Alex and I had a discussion about it AGAIN after helping him
with some health homework (STD's was the topic and we all know how you get
those). Or maybe he never truly understood it the first time.............
The reason we wanted him to be aware of the b and bees is that we don't want
anyone to take advantage of his ignorance. Nuff said on that one.

To have babies he needs a female. I often wonder what his chances for that
are. Most parents are not going to steer their daughters to marry a man with
limited job potential and mental abilities. Gotta say that I wouldn't put
that on my daughters wish list for a hubby.

As for Alex having children, how would he deal with having a full trier?????
I mean taking care of himself will be a challenge out in the world all on
its own. Even a typical baby would be a challenge with his current limited
ability to "think outside the box" (ie: if this doesn't work I'll try that
kind of thing. If this doesn't work I give up is the current way it goes).

We all want the BEST for our children and my heart breaks to think that Alex
won't be considered best for anything to do with matters of the heart and
future (as I sit crying typing and thinking about this).

On the other hand, maybe there's someone out there who's similar to him and
they would be happy together. But how would they do it? What does it mean
for me? Playing the selfish card here but will Jim and I ever have that
"post children" time for US ? Granted that's not a driving force for me but
something I do think about now and then.

I realize that with Alex being 4 years away from high school graduation
there is a lot of time yet to see just where his abilities fall. Guess I'm
just being a worry wart..............

Michelle mom to Alex (14,partial trisomy 14 mosaic) and Molly (11)
MichiganUSA


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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