[tri-med] Re: [tri-mosaic] Info Needed for Surgery


----- Original Message -----
From: "Karen Schuler" <karens@xxxxxxxxxxxxxxxx>
> >>Would like to know if there are any parents out there with T18 or t18
mosaic children that have had to have a partial
> hysterectomy.

Kathey,

I have no personal experience or knowledge of anyone who has been down this
road.

Just a few thoughts though........

Rock and hard place time isn't it?  {{{{{Kathey}}}}}

If it were me and my child's health was at risk without the procedure that
would weigh heavily in the direction of having it done.

 Having to get a court order must be though. I'm hoping that you are able to
receive one without much angst. Curiosity has me asking this question, how
is this procedure different in the eyes of the drs than any other medical
procedure that Kandice isn't able to consent for? Is it the reproductive
rights issue?

As for getting info on hysterectomies in adolescents, have you searched for
a listserve or talked with a ob/gyn about finding others who have been in
similar situations.

Good luck to you all!
Michelle mom to Alex (14,partial trisomy 14 mosaic) and Molly (11)
MichiganUSA



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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