[tri-med] Re: [tri-med]Joanna's latest pneumonia

Warm positive thoughts and prayers coming your way for Joanna to beat 
this and get better quickly from your friends in Australia. Jo is our 
flagship! Big (((HUGS))).

At 06:07 AM 30/04/2006, you wrote:
>         Jo's into day 6 of her latest pneunomia.  She started with 
> 102.2 last
>Sunday, very low grads temps Monday, and by Tuesday was bak in PICU.  Very
>sick cookie this time - 24 hour bipap, which leaves her pretty cut off as she
>can see without her glasses and hearing is minimal.  Antibiotic 
>helpled with the
>discomfort and temps running their course - 99's today.  Huge fungal rash on
>bottom, around gtube, neck, is getting slathered with Nystatin at 
>every diaper
>change.  I'm getting home for a shower and hair wash every 2 days then back
>on the principle that the worse Mommy looks, they will take pity and let her
>home - the last place she needs tho until she is ready.  Last 
>pneunomia was just
>back in November - lungs getting weaker...,  at 3am was telling nurse how I
>missed her smile - she didn't realize Jo could smile!  At least her docters
>know that big grin!- and her own pulmonologist also works the PICU and is
>ordering her care.  On special request from the staff Ijust got 3 
>hours of sleep in
>my own bed, heaven!, was home for 6 hours this time, no others in PICU after
>twins go home so she is getting undivided attention and I'm heading back soon.
>        My love to all - haven't looked at email in  weeks it seems, but you
>are all in my hearts and prayers. I'll save emails until I get back to them -
>hospital has no computer hookups - at least in PICU.
>
>        Within half an hour in the ER a doctor was down with her medical
>students checking out T-18 characteristics - LOL!  Sorry, Jo doesn't 
>have rocker
>bottom feet!
>
>Love Chris, Boni and Jo T-18 31 years
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>
>
>
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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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