[tri-med] Re: tri-med Heart Surgery

just send them to me - i will put it together-and thanks
pam
----- Original Message ----- 
From: "Reatha Lyda" <redu@xxxxxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Monday, September 27, 2004 8:16 PM
Subject: [tri-med] Re: tri-med Heart Surgery


> Pam, Jacob has T-19q and  has Tetrology of Fallot, with pulmonary atresia,
> he
>  has had 2 pallitive surgeries, because his particular Tetrology isn't
> correctible. One
> at 7 months and only weighed 10 lbs, and another at 5 yrs. and weighed 22
> lbs.
> Jacob is now 15 yrs old, he can crawl, pull to stand,  is g-tube fed and
has
> a multitude
> of other medical problems, but is such a happy little guy! He has a
> wonderful quailty
> of life!!
> Where shall I send pics??!
>
> Love, Reatha, mom to Jacob, T-19q, and wife to Duane, my soulmate
> Hendersonville, NC
>
>
>
> > i would really appreciate it if anyone who is willing would send a photo
> and
> > a description of their child listing what they can do , how they
function
> and
> > do have quality of life.
>
> > PAM:  Emily has T13 Mosaic and she had ASD, VSD and PDA repaired by open
> > heart surgery at 3 months old...weighing 4 lbs. and with congestive
heart
> failure.
> >  She is now 8 years old and walking and talking and full of life!!  I
> would
> > be glad to help.  Just let me know who and where to send a pic and
note??
> >
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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