[tri-med] Re: tri-med Digest V7 #184
- From: Jennifer Johns <kjehjohns@xxxxxxxxxxxxx>
- To: tri-med@xxxxxxxxxxxxx
- Date: Thu, 17 Apr 2008 05:32:25 -0500 (GMT-05:00)
-----Original Message-----
>From: FreeLists Mailing List Manager <ecartis@xxxxxxxxxxxxx>
>Sent: Apr 17, 2008 1:26 AM
>To: tri-med digest users <ecartis@xxxxxxxxxxxxx>
>Subject: tri-med Digest V7 #184
>
>tri-med Digest Wed, 16 Apr 2008 Volume: 07 Issue: 184
>
>In This Issue:
> [tri-med] medicaid denial of a sleep safe bed
> [tri-med] Re: medicaid denial of a sleep safe bed
> [tri-med] Re: medicaid denial of a sleep safe bed
> [tri-med] Re: medicaid denial of a sleep safe bed
> [tri-med] Re: medicaid denial of a sleep safe bed
> [tri-med] Bone rejection-lengthening
> [tri-med] Re: medicaid denial of a sleep safe bed
> [tri-med] Re: medicaid denial of a sleep safe bed
> [tri-med] Re: Bone rejection-lengthening
>
>----------------------------------------------------------------------
>
>From: "Jude Wolpert" <jfwolpert2@xxxxxxxxxxx>
>Subject: [tri-med] medicaid denial of a sleep safe bed
>Date: Wed, 16 Apr 2008 11:03:57 -0600
>
>aaa is kind of giving me the run around on not knowing how to resubmit to be
>successful on how to get this bed for my daughter. it seems it doesnt have
>a code as it is not enlcosed
>it is just safer for my 63 lbs 5'2" tall almost 11 yr old daughter so she
>wont fall out of her bunk bed (set on the floor) with small rails.
>www.sleepsafebed.com
>
>she cant sit up yet but she rolls and spins around like crazy at nite. i
>never expected her to be able to roll over eaither so i am just trying to
>anticiapate a bit. she defintely doesnt need a bed with a net on the top
>but that is the kind medicaid has a code for.
>
>has anyone been successful with this? can you let me know how?
>thanks
>jude, mom to derek-21, kelsey-19
>and kameron-10-full trisomy 18 (hanging out so i will never be an empty
>nester)
>golden, colorado usa
>http://www.judewolpert.com
>http://flickr.com/photos/judewolpert/
>
>
>
>------------------------------
>
>From: Holly McCormick <hollyandms@xxxxxxx>
>Subject: [tri-med] Re: medicaid denial of a sleep safe bed
>Date: Wed, 16 Apr 2008 12:15:50 -0500
>
>We got this bed for Morgan last fall. If I remember correctly,though,
>insurance turned it down and we were able to get it thru the waiver Morgan is
>on. We used waiver $ not medicaid. I didn't do anything other than ask the
>p.t. and ped. to write letters stating why we wanted the bed. I don't think
>size played into it, Morgan is a bit bigger than Kam, other than we said it
>was easier transferring from chair to bed and bed to chair than the bed we had
>before.
>
>"Don't deny the diagnosis...deny the verdict."
>
>Norman Cousin
>
>
>
>Holly ( Des Moines, IA) -- wife of Mike
>mom of Morgan (10 yrs. old) unbalanced translocation resulting in partial t18q
>and partial monosomy 9p
>dx'd with type 1 diabetes 03-17-08, injecting insulin - humalog & lantus
>
>
>
>
>
>------------------------------
>
>From: "Janet King" <jlvking@xxxxxxxxxxxxxxxxxxx>
>Subject: [tri-med] Re: medicaid denial of a sleep safe bed
>Date: Wed, 16 Apr 2008 13:29:02 -0400
>
>Jude,
>
>We tried and tried to get that bed for Hannah but the insurance company
>called it a convenience/luxury item. Our med supplier ended up =
>sumbitting a
>request on her behalf to Variety Children's Charity. About 2-3 weeks =
>later
>we got a call that her bed was in! It's a WONDERFUL bed!!!!!
>
>
>-----Original Message-----
>From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] =
>On
>Behalf Of Jude Wolpert
>Sent: Wednesday, April 16, 2008 1:04 PM
>To: tri-med-freelists
>Subject: [tri-med] medicaid denial of a sleep safe bed
>
>
>aaa is kind of giving me the run around on not knowing how to resubmit =
>to be
>successful on how to get this bed for my daughter. it seems it doesnt =
>have
>a code as it is not enlcosed it is just safer for my 63 lbs 5'2" tall =
>almost
>11 yr old daughter so she wont fall out of her bunk bed (set on the =
>floor)
>with small rails. www.sleepsafebed.com
>
>she cant sit up yet but she rolls and spins around like crazy at nite. =
>i
>never expected her to be able to roll over eaither so i am just trying =
>to
>anticiapate a bit. she defintely doesnt need a bed with a net on the =
>top
>but that is the kind medicaid has a code for.
>
>has anyone been successful with this? can you let me know how? thanks =
>jude,
>mom to derek-21, kelsey-19 and kameron-10-full trisomy 18 (hanging out =
>so i
>will never be an empty
>nester)
>golden, colorado usa
>http://www.judewolpert.com http://flickr.com/photos/judewolpert/
>
>
> =20
>
>
>------------------------------
>
>Date: Thu, 17 Apr 2008 09:32:37 +1000
>From: Jocelyn <jknowd@xxxxxxxxxx>
>Subject: [tri-med] Re: medicaid denial of a sleep safe bed
>
>Wow Jude, Kammie is taller than me now!!!!!!!!!!!!!!!! I'm only 5' 1
>& 1/2 inches tall. Whatcha been feedin that thar girl???? (smile)
>
>At 03:03 AM 17/04/2008, you wrote:
>>aaa is kind of giving me the run around on not knowing how to resubmit to be
>>successful on how to get this bed for my daughter. it seems it doesnt have
>>a code as it is not enlcosed
>>it is just safer for my 63 lbs 5'2" tall almost 11 yr old daughter so she
>>wont fall out of her bunk bed (set on the floor) with small rails.
>>www.sleepsafebed.com
>>
>>she cant sit up yet but she rolls and spins around like crazy at nite. i
>>never expected her to be able to roll over eaither so i am just trying to
>>anticiapate a bit. she defintely doesnt need a bed with a net on the top
>>but that is the kind medicaid has a code for.
>>
>>has anyone been successful with this? can you let me know how?
>>thanks
>>jude, mom to derek-21, kelsey-19
>>and kameron-10-full trisomy 18 (hanging out so i will never be an empty
>>nester)
>>golden, colorado usa
>>http://www.judewolpert.com
>>http://flickr.com/photos/judewolpert/
>>
>>
>> Building ___ooOOoo__ Rainbows
>> www.trisomyonline.org
>> Families Helping Families On-line
>>
>>
>>
>>
>>--
>>No virus found in this incoming message.
>>Checked by AVG.
>>Version: 7.5.519 / Virus Database: 269.23.0/1379 - Release Date:
>>15/04/2008 6:10 PM
>
>Jocelyn, loving Nanna to Tess with Trisomy 18, age 11 years
>.
>
>
>------------------------------
>
>From: "Jude Wolpert" <jfwolpert2@xxxxxxxxxxx>
>Subject: [tri-med] Re: medicaid denial of a sleep safe bed
>Date: Wed, 16 Apr 2008 17:42:18 -0600
>
>but it was a typo she is 4'2"....hahaha
>
>she takes after her big brother who is 6'3" rather than her big sister who
>says she is 5'3". so kels cant really transfer her anymore as she is too
>long.
>bill is only 5'7" and i am 5'9" she she may outgrow us all.
>
>she will still end up being tall i think. one of my sisters is 6' tall.
>thanks for keeping me honest!
>jude, mom to derek-21, kelsey-19
>and kameron-10-full trisomy 18 (hanging out so i will never be an empty
>nester)
>golden, colorado usa
>http://www.judewolpert.com
>http://flickr.com/photos/judewolpert/
>
>----- Original Message -----
>From: "Jocelyn" <jknowd@xxxxxxxxxx>
>
>> Wow Jude, Kammie is taller than me now!!!!!!!!!!!!!!!! I'm only 5' 1
>> & 1/2 inches tall. Whatcha been feedin that thar girl???? (smile)
>
>
>------------------------------
>
>Date: Thu, 17 Apr 2008 09:57:21 +1000
>From: Jocelyn <jknowd@xxxxxxxxxx>
>Subject: [tri-med] Bone rejection-lengthening
>
>I remember someone asked about lengthening their childs bones. I
>responded with some information about my tooth/gum problem, where the
>dentist had peeled back the gum, scraped away cystic tissue, then
>some bone, which they mix with this "magic stuff", (don't know what
>it's called). It is supposed to grow more of your own bone. Well it
>is about 8 weeks since the original procedure. The area has never
>really completely healed, and about two weeks ago an abscess
>developed, it got bigger, and a week ago I went back to the dentist,
>who put me back on anti-biotics, (my original dentist was away).
>Yesterday I went back and had to have to whole thing opened up again,
>and cleaned out. While he was in there he said that the bone was
>trying to grow, but my body was seeing it as a foreign invader (like
>your finger would if it got a splinter in it, it becomes inflamed).
>So to keep on with the antibiotics. Washing mouth several times a day
>(especially after meals) with warm salty water. He has not sutured it
>this time, so it can drain. (yuk).
>
>Anyway the purpose of this email, is to draw attention to the
>possibility of rejection with this sort of procedure.
>
>If it flares up again, I will lose the tooth. It is so frustrating
>(not to mention the expense, as we are not covered for more than
>basic dental treatment).
>
>I was supposed to be seeing Tess today, but I've cancelled, as I'm
>afraid of passing on "bugs" to her. Not to mention the possibility of
>getting a friendly pat in the mouth as she is prone to do sometimes.
>
>
>
>Jocelyn, loving Nanna to Tess with Trisomy 18, age 11 years
>.
>
>
>------------------------------
>
>From: "Terre Krotzer" <terrek@xxxxxxxxxxx>
>Subject: [tri-med] Re: medicaid denial of a sleep safe bed
>Date: Wed, 16 Apr 2008 16:58:26 -0700
>
>That's funny, I was thinking how tall she is too! Krissy is about
>42 inches tall and 42 pounds. I say that makes her a square!
>
>Bedwise... we got her a single size regular captains bed with
>drawer in the frame. Then I made what I call a "bednet" that
>keeps her from falling out. It goes under the mattress and up the
>sides about 18 inches so she can't roll out. It worked great
>until she got poop on it and I had to wash it. It shrank a bit
>oddly so that while it still works it needs to be remade. Next
>time I'll shrink the material first!!! Its kind of cool though.
>She can see out, we can see in but she's safe.
>
>All the best,
>Terre
>=20
>Mom to Kevin - 21, Keith - 18, Kenny - 15, Korey - 13, and
>precious
>Krissy (better known as Princess Krissy!) (T18) - 7 years - with
>a smile that lights up the world!
>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>Terre Krotzer
>terre@xxxxxxxxxxxx
>=20
>" There are two ways of spreading light; to be the candle or the
>mirror that reflects it."=20
>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>Show your family how much you care...
>Get your Will and Living Will in place today...=20
>www.krotzers.com
>
>
>-----Original Message-----
>From: tri-med-bounce@xxxxxxxxxxxxx
>[mailto:tri-med-bounce@xxxxxxxxxxxxx] On Behalf Of Jude Wolpert
>Sent: Wednesday, April 16, 2008 10:04 AM
>To: tri-med-freelists
>Subject: [tri-med] medicaid denial of a sleep safe bed
>
>
>aaa is kind of giving me the run around on not knowing how to
>resubmit to be successful on how to get this bed for my daughter.
>it seems it doesnt have a code as it is not enlcosed it is just
>safer for my 63 lbs 5'2" tall almost 11 yr old daughter so she
>wont fall out of her bunk bed (set on the floor) with small
>rails. www.sleepsafebed.com
>
>she cant sit up yet but she rolls and spins around like crazy at
>nite. i never expected her to be able to roll over eaither so i
>am just trying to anticiapate a bit. she defintely doesnt need a
>bed with a net on the top but that is the kind medicaid has a
>code for.
>
>has anyone been successful with this? can you let me know how?
>thanks jude, mom to derek-21, kelsey-19 and kameron-10-full
>trisomy 18 (hanging out so i will never be an empty
>nester)
>golden, colorado usa
>http://www.judewolpert.com http://flickr.com/photos/judewolpert/
>
>
> Building ___ooOOoo__ Rainbows
> www.trisomyonline.org
> Families Helping Families On-line
>
>
>------------------------------
>
>Date: Thu, 17 Apr 2008 10:00:02 +1000
>From: Jocelyn <jknowd@xxxxxxxxxx>
>Subject: [tri-med] Re: medicaid denial of a sleep safe bed
>
>whew thank goodness for that Jude.
>
>At 09:42 AM 17/04/2008, you wrote:
>>but it was a typo she is 4'2"....hahaha
>>
>>she takes after her big brother who is 6'3" rather than her big sister who
>>says she is 5'3". so kels cant really transfer her anymore as she is too
>>long.
>>bill is only 5'7" and i am 5'9" she she may outgrow us all.
>>
>>she will still end up being tall i think. one of my sisters is 6' tall.
>>thanks for keeping me honest!
>>jude, mom to derek-21, kelsey-19
>>and kameron-10-full trisomy 18 (hanging out so i will never be an empty
>>nester)
>>golden, colorado usa
>>http://www.judewolpert.com
>>http://flickr.com/photos/judewolpert/
>>
>>----- Original Message -----
>>From: "Jocelyn" <jknowd@xxxxxxxxxx>
>>
>> > Wow Jude, Kammie is taller than me now!!!!!!!!!!!!!!!! I'm only 5' 1
>> > & 1/2 inches tall. Whatcha been feedin that thar girl???? (smile)
>>
>> Building ___ooOOoo__ Rainbows
>> www.trisomyonline.org
>> Families Helping Families On-line
>>
>>
>>
>>
>>--
>>No virus found in this incoming message.
>>Checked by AVG.
>>Version: 7.5.519 / Virus Database: 269.23.0/1382 - Release Date:
>>16/04/2008 5:34 PM
>
>Jocelyn, loving Nanna to Tess with Trisomy 18, age 11 years
>.
>
>
>------------------------------
>
>From: Lbsunshine77@xxxxxxx
>Date: Wed, 16 Apr 2008 20:26:22 EDT
>Subject: [tri-med] Re: Bone rejection-lengthening
>
>Hey Jocelyn, this is linda b gabby's mom (trisomy 14 mosaic).. Gabb's
>grandma linda A , write a message asking for info the dr. say that her leg
>size is
>at a point to think about surgery,, we were hoping that she would be a little
>older before that was going to take place but this child is growing like a
>weed..lol so they feel its something to really start considering.. we had a
>appt last week to see the orthapedics, but gabb's was a little under the
>weather
>.. but in all she is doing really good ... linda b mom to gabby 5yrs old
>(trisomy 14 mosaic) and kaylen 2yrs old
>
>
>In a message dated 4/16/2008 7:57:58 P.M. Eastern Daylight Time,
>jknowd@xxxxxxxxxx writes:
>I remember someone asked about lengthening their childs bones. I
>responded with some information about my tooth/gum problem, where the
>dentist had peeled back the gum, scraped away cystic tissue, then
>some bone, which they mix with this "magic stuff", (don't know what
>it's called). It is supposed to grow more of your own bone. Well it
>is about 8 weeks since the original procedure. The area has never
>really completely healed, and about two weeks ago an abscess
>developed, it got bigger, and a week ago I went back to the dentist,
>who put me back on anti-biotics, (my original dentist was away).
>Yesterday I went back and had to have to whole thing opened up again,
>and cleaned out. While he was in there he said that the bone was
>trying to grow, but my body was seeing it as a foreign invader (like
>your finger would if it got a splinter in it, it becomes inflamed).
>So to keep on with the antibiotics. Washing mouth several times a day
>(especially after meals) with warm salty water. He has not sutured it
>this time, so it can drain. (yuk).
>
>Anyway the purpose of this email, is to draw attention to the
>possibility of rejection with this sort of procedure.
>
>If it flares up again, I will lose the tooth. It is so frustrating
>(not to mention the expense, as we are not covered for more than
>basic dental treatment).
>
>I was supposed to be seeing Tess today, but I've cancelled, as I'm
>afraid of passing on "bugs" to her. Not to mention the possibility of
>getting a friendly pat in the mouth as she is prone to do sometimes.
>
>
>
>Jocelyn, loving Nanna to Tess with Trisomy 18, age 11 years
>.
>
>Building ___ooOOoo__ Rainbows
>www.trisomyonline.org
>Families Helping Families On-line
>
>
>
>
>
>**************Need a new ride? Check out the largest site for U.S. used car
>listings at AOL Autos.
>(http://autos.aol.com/used?NCID=aolcmp00300000002851)
>
>
>
>------------------------------
>
>End of tri-med Digest V7 #184
>*****************************
>
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line
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