[tri-med] Re: [tri-med]
- From: Fawna <fawna33@xxxxxxxxxxxxxx>
- To: tri-med@xxxxxxxxxxxxx
- Date: Sat, 24 Sep 2005 04:22:45 -0700 (GMT-07:00)
>Have any of you heard or have had any experience like this???
ThereseAnn,
Philina's similar, but different, situation was an attempted canalplasty.
Dr P was planning on surgically widening one of her ear canals. That
one is miniscule, unlike the other side. In fact one whole side of her
body is just smaller then the other side in all respects...from her foot
1/2 size smaller, to a lop sided breast, to the ear canal. But when he
actually got in there he freaked. Not only did he find her facial nerve
where it shouldn't have been, it was totally missing it's outer protective
sheath too. Needless to say, he just closed her back up said HE'D rather
deal with an occasional day surgery to clean out that ear good, then to
risk damaging that smile of hers. (Okay, actually he made a comment
here about undersized anatomy of his own...LOL)
He had successfully done bilateral mastoidectomies on her earlier though,
because her ears never really cleared up. Antibiotics & wicks only masked
the infection for short periods of time. In her case though, it was the porous
bones themselves behind her ears that held the infection, not cysts. So
it's all a judgement call on the doctor's part.
Fawna, mom to Philina 21 yrs (PT6p & Moya Moya Syndrome)
http://home.mindspring.com/~fawna33/
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line
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