[tri-med] Re: [tri-family] trisomy 14 mosiacism


-----Original Message-----
>From: boris <typsy@xxxxxxxxxxxxxxx>
>
>Subject: [tri-family] trisomy 14 mosiacism
>
>Hi members, My name is Tanya and have a 2year old son Kye who was diagnoised
>with trisomy 14 mosicism at 20 months of age.
>This little boy has had a challenging life since birth with many medical
>procedures consisting of 6 operations, tube feeding, fail to thrive and the
>list goes on.  A huge blessing is he started to walk at 22months, something
>my husband and I thought we would ever see.  If anyone has any information
>on this syndrome or knows of any one please do not hesitate to contact me .
>
>Looking forward to the support I will receive from you all.  I guess this is
>a challenging life for all of us.  We just got to remember these special
>children were given to us for a very special reason, and I love him very
>much.

Tanya,
Sounds like Kye is doing a fantastic job.  We share your excitement over his
fantastic achievement of walking!

Our daughter, Mari will be 5 in August.  She is not walking yet, but we're
working on it!  Our church graciously raised the money for a LiteGait walker
which arrived just before Easter. We haven't gotten much time in it yet,
but we're excited! 

Hoping to hear more about Kye!

Smiles,
 

Chris (mama to Mari, full T18, dob 8/24/01)
Tipp City, OH  45371
http://pg.photos.yahoo.com/ph/misstippcity/my_photos
http://home.earthlink.net/~loganfamily/id1.html
http://www.benotafraid.net/story.asp?id=38
http://web.coehs.siu.edu/Grants/TRIS/
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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