[tri-med] Re: [tri-family] hole

----- Original Message ----- 
From: "gina L Anderson"
> > i know there is a word for this but what is it called when there is a
hole
> from the lip into the nose.

Sounds like you are describing a cleft lip (it used to be called a hare lip
but thats now politically incorrect)

 >>would you do that to a baby. do thay doctors  tell
> you to do that.

Yes - eventually they will repair the lip but thats fairly complex plastic
surgery and they usually wait until the baby is a good weight for surgery
before they do. In the meantime they usually just tape it, partly for
appearance and partly so that the baby can get a seal on a bottle etc.

>>do this hole just happen in  triosmy baby or does it happen
> will health babes to,

Its actually quite common in otherwise healthy babies. A cleft lip and or
palate is part of the spectrum of neural tube defects. Simply put its a
failure of the two sides of the body to come together completly in utero.
Neural tube defects can be caused by all sorts of things, and some are still
unknown. The most common known preventative is to take folic acid BEFORE you
fall pregnant.

>>this   baby also have the eye.s that are  close
> together and low birth weigh around 5 lbs. i did  not see the baby but was
> told about her. the baby just didn't look healthy.

Its possible that it could be a chromosomal anomaly of some sort, but it
could be any of a dozen other problems or none at all. Its impossible to say
without a doctor doing the clinical tests. For example eyes that are small
and close together could be Russell-Silver Syndrome, Fetal alcohol syndrome,
Trisomy 13, partial monosomy 13, CHARGE syndrome, Goldenhar syndrome, one of
the Velo-cardio syndromes or any one of a dozen others.
Sorry sweet - a case of waiting for the test results to come back and the
mum telling you. No reason not to befriend her and offer support though -
just be careful until she knows what she is dealing with and ready to accept
it. I lived in the land of De-Nial until Alex was about 4 months old and
even then "I" could admit things but wasn't ready for others to tell me,
even if I already knew.
A dear friend back then, Robyn, could see Alex had major issues but also
knew I wasn't ready to accept that fact. I love her dearly for being there
for me, but also because she allowed me space to work through everything in
my head in my own time. She must have thought at times I was horrid person
and an even worse mother......... but I got there - eventually :-)) There
are none so understanding as those who have been along the same path -
Robyns son has achondroplasia.

We can not change the wind. But we can change the sails.
~Ghandi~

Keep Looking For Rainbows!!
Karen, Mum to Alex (8 years, T-18 Mosaic)
http://members.optushome.com.au/karens

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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