[tri-med] Re: [tri-family] Stephen Update 3/27/05


Good to hear that Stephen is doing so well. Thanks for the update.

At 07:22 PM 28/03/2005 -0500, you wrote:

> > Subject: [tri-family] Stephen Update 3/27/05
> >
> > Hi,
> > Happy Easter to everyone!  I hope you all had a blessed day!
> >
> > Here=92s an update on Stephen.
> >
> > Stephen has been doing very well the last couple of weeks.  His breath
> > holding episodes have decreased significantly in frequency and
> > severity.  He=92s only been having =930=94 or =931=94 per day, without=
 the need
> > for oxygen.  Also, he=92s generally been able to keep down his food.
> > There have been a couple of times where he=92s suffered a little with=
 what
> > appears to have been a stomach virus but these episodes have been short
> > and he=92s recovered quickly from them.  He=92s up to 15 lbs 3 oz =AD he=
 was
> > 10 lbs 6 oz when he returned home from the hospital after having his
> > heart and intestine surgery on February 8th.  We=92re so thankful that
> > he=92s doing well with both the breath-holding and in gaining weight.
> >
> > His oral intake still varies a bit =AD lately, it has been in the 40-60=
 ml
> > range per feeding which is =BC to 1/3 of his total nourishment.  Because
> > he has not been able to increase his oral intake to the point at which
> > he can sustain himself using only the Haberman bottle, we have decided
> > to have a G-tube inserted for the balance of his nourishment beyond
> > which he gets with the special Haberman bottle.  We will continue to
> > feed Stephen with the Haberman bottle and use the G-tube for the
> > remainder of the feeding. Our hope is that Stephen will get to the point
> > at which he takes all of his nourishment orally without the need for the
> > G-tube =AD perhaps this will happen after the palate correction which
> > would likely be in 3-4 months.
> >
> > Stephen is scheduled for surgery at Children=92s Hospital in Washington=
 DC
> > to correct his cleft lip this coming Wednesday.  In fact, he will also
> > get the G-tube inserted on Wednesday, at 7:30 AM, and this will be
> > followed by the lip repair which is supposed to begin at about 8:00 AM.
> > We would appreciate your prayers that the Good Lord would direct the
> > doctor=92s hands such that both surgeries will be successful and that
> > Stephen will come through them safely.
> >
> > Elizabeth and I continue to do well and the children are also doing well
> > =AD everyone=92s in good heath and we=92re catching up a bit with=
 homeschool.
> > Elizabeth=92s mom has returned to us and that is also a great blessing=
 for
> > us all.
> >
> > Elizabeth and I appreciate all your thoughts and prayers for Stephen and
> > our family =AD they are such an encouragement to us!
> >


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