[tri-med] Re: [tri-family] Re: life expectancy thoughts

----- Original Message -----
From: "gina L Anderson"
> i use to do that to, not anymore, i can't think that far ahead, always
> something happens

Gina,
I think that you will find the first 12 months / 2years the worst for that.
The first couple of years are when you find out all sorts of new things
about your child, when every time you go to the doctor they seem to find
something else wrong until you think you can't stand it any more. A time
where you worry about every little cough cold or sneeze in case "this is
it"......... Its also the time where you do your most learning about how to
cope and sorting out your life. Learning to live with the constant grieving
for the child that you thought you were going to have.......

But slowly and without ever really noticing you start to adjust and relax,
not living life waiting for the next bomb to drop. Even slower than that you
start to live life again, moving from hours, to days, to weeks and so
on.......

That doesn't mean that the bombs ever stop!!! Its just that they change and
there is a little longer in between to adjust.

At the moment on a good day I can look a month or two ahead, but most of the
time I prefer to live on the River De-Nile (denial) - its safer and much
more comfortable at this point. I don't think life or even I will ever be
able to go back to how things were before - and I am not sure I want to -
but I know one day I will look ahead again. Until then I will keep looking
for my daily rainbows and trying to put one foot in front of the
other.........

After the game the king and the pawn go in the same box.
-Italian proverb

Keep Looking for Rainbows!!!
Karen, Mum to Alex (6, T-18 mosaic)
Sydney, Australia
http://members.optushome.com.au/karens
http://www.trisomyonline.org

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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