[tri-med] : [tri-family] Re: Pregnancy Question C-SECTION

To whoever wrote this email. I want to tell you that if you had a previous
c-section yes you can force a doctor to do a repeat c-section. That is a law 
not an option for doctors. It is the pregnant mothers choice NOT the doctors 
but you must have had a previous c-section in order for the law to be 
applied. If you want a c-section and the dotors wont do it you need to find 
a new doctor. You can get whats called a uterine window and you could 
reputure your own uterous by doing a v-back. Not to mention what can 
happened to the baby. This just happened at our local hospital 3 weeks ago 
and the poor baby died. That baby was 100% healthy before birth. If you want 
a c-section tell the doctors you know the law and you want a c-section. They 
have to do it if you were a previous c-section. I hope this info helps.



----- Original Message ----- 
From: "Magdalena E Hudson" <magdalenahudson@xxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Tuesday, August 26, 2008 8:33 AM
Subject: [tri-med] Re: [tri-family] Re: Pregnancy Question


> This is a great email, Thank you,
>
> Lena
> - mom to 7 living children; Paul 13, Tommy 10, Philip 8, Mary 6, Christa 
> 4,
> Lucy 2 and Sarah my baby with trisomy 18, and wife to my inexhaustible,
> devoted husband, Tom
>
>
>
> -----Original Message-----
> From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] 
> On
> Behalf Of Karen
> Sent: Monday, August 25, 2008 7:53 PM
> To: tri-family@xxxxxxxxxxxxx
> Cc: tri-med
> Subject: [tri-med] Re: [tri-family] Re: Pregnancy Question
>
> ----- Original Message ----- 
> From: "Wendlandt, Jill R
>>>I just got back from my appointment with the geneticist.  She went over
>>>the FISH test results and the ultra sound findings.  It doesn't appear
>>>that its "partial" or "mosaic" but it was a little confusing to me 
>>>because
>
>>>of 235 cells tested, 85% showed the extra 18th chromosome.
>
> Did she say why it wasn't mosaic? Was it poor signals? Because if only 85%
> of the tested cells showed the additional 18th signal then thats exactly
> what mosaicism is and the best test for mosaicism is the FISH. The FISH
> should always be confirmed by the g-banding (cultured karyotype) but the
> FISH gives you the best picture of mosaicism because it tests so many more
> cells.
>
>>>There was a long list of all that is normal with her and the obvious
>>>"abnormalities" and the unknowns.  The things that were noticeably wrong
>>>were the rocker bottom feet (both left and right) and overlapping digits
>>>on both hands, strawberry shaped head, and cysts on the brain (I left my
>>>notes in my car so that's not as specific as they told me).
>
> The things "wrong" so far seem to be all cosmetic. The rocker bottom feet
> need no treatment after birth and in most cases once the child starts 
> weight
>
> bearing some will flatten out. The same with the overlapping fingers. Some
> therapists will splint them but in most cases its not necessary as over 
> time
>
> the fingers on the hand will open up more. All you really need to do is 
> make
>
> sure that when you are cuddling your little one that you open up her 
> fingers
>
> and make sure that the area underneath stays dry.
> Even the choroid plexus cysts are benign. In most cases they disappear in 
> a
> week or two and even if they stay until birth (really rare) they cause no
> problems.
>
>>>There appeared to be no cleft palate, no spina bifida, no curvature of 
>>>the
>
>>>spine - the heart is unknown as they couldn't get a good view and I'll go
>>>back in on September 11 to get the heart diagnosed better.
>
> Thats all great news!!! Just remember that ultrasounds are not a 
> diagnostic
> tool - only an aid. Sometimes ultrasounds see things that aren't there and
> sometimes they miss things that aren't. A lot is just simply due to size 
> and
>
> the resolution of the ultrasound. Your baby is really small, the 
> resolution
> is not great on ultrasounds (about 1cm) and so much depends on the 
> expertise
>
> of the sonographer. Even now that Alex is almost 14 what one doctor sees 
> on
> an ultrasound can be very different to another doctor looking at the same
> pictures.
>
>> I asked them to do an ultra sound because I haven't felt much movement 
>> and
>
>> they did -
>
> Thats not uncommon at all, especially if there is a lot of fluid. Our kids
> are small, don't move all that much and if there is extra fluid there is
> that much more extra cushioning so that you don't feel the movements that
> are there.
>
> Alex definitely moved far less than any of my other kids and I always hung
> out for them to check his heartbeat for my own reassurance.
>
>>
>> I was told that they won't do a caesarean just because birth is stressful
>> to the baby - she said that would pose too much risk to me when the
>> prognosis for the baby is so poor.  I will explore that further with my
>> obstetrician.
>
> Alex was born by c-section but we didn't know that he had T-18. While you
> can't force a doctor to do a c-section there is a study that suggests our
> kids do do better with a c-section, especially if there is a heart
> condition. Understandably a vaginal birth is lot harder on the baby if 
> they
> do have a heart condition and many wont survive a natural birth for that
> fact alone.
>
> Life consists not in holding good cards but in playing those you hold 
> well.
>                                            -- Josh Billings
>
> Keep Looking For Rainbows!!
>   _--_|\
> /Karen \
> \ _.--._ /
>          v Karen, Mum to Alex (13 years, T-18 Mosaic)
> http://members.optushome.com.au/karens
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
> 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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