[tri-med] Re: [tri-family] Re: Ella (moved to tri-med)

In a message dated 6/20/2005 8:16:36 PM Eastern Standard Time, 
lorenwarn@xxxxxxxxx writes:
> What have you out there and your 
> >doctors done for seizures and what has worked and what has not? we are 
> >in need of info on this and the emotions are running rampart 

Best wishes for your Ella's seizure control.  My Joanna has had seizures in 
varying forms since about 10 years of age.  We have a great pediatric 
neurologist  who has kept them under control for 20 years.  Sometimes 
medications work 
well, then need to be increased/changed.  Some have inherent problems, but the 
good they do outweighs the bad (Her Depakote will cause platelet count to 
drop - then needs to be lowered, etc.)  Currently she is on 4 seizure 
medications 
including one investigational.  She will still have seizures 3-4 times a day 
- 20-30 seconds when urinating or defecating, but that is mild compared to 
what she would do without the meds,  just keep good notes and have a doctor 
that 
will actually call you back!

Hugs,

Chris H., Mom to Joanna T-18, 30 years


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