i wish kam could tlak to tell me about pain. she just gets a startled type face when she gets a shot. we have really only seen tears a few times and it is always taken very seriously here. since i usually cant notice any thing causing pain i think she might have a head ache. kam continues to freak out folks for iv's as her best vein is a head vein and they dont like to do those unless it is a newborn. but she will not moveor fuss at all if in her head, just try to get her in the arms or feet....hahaha i will say too that kam has never cried for food in her life either. her record is 3 days on iv fluid when they were doing gi testing for her bleed. the hospital nutrionist was having a cow that she wasnt being fed with a central line...i said no way. jude, mom to derek-17, kelsey-15 and kameron-6-full t18 golden, colorado usa http://home.attbi.com/~jfwolpert2 ----- Original Message ----- From: "Karen" <karens@xxxxxxxxxxxxxxxx> > Sometimes he will seem to respond typically to pain, other times there is > absolutely no response, even though you expect a major crying jag. It also > doesn't help us that Alex really has to be upset to get any overflow tears > (Alex has majorly reduced tear production) The more painful the pain the > less he seems to respond. (eg a mosquito bite really bothers him, as does a > torn cuticle on his finger, but a broken foot or surgery barely raises an > eyebrow) > > But Claire is definitely one up on Alex - Alex has never in his life cried > for food. If I had left the master on demand feeds as a baby he would have > starved to death and I am serious. Even now he has to be reminded to eat and > when to stop. He is on an appetite stimulant but still I think eating to him > is more a learned behaviour. Building ___ooOOoo__ Rainbows www.trisomyonline.org Families Helping Families On-line