[tri-med] Re: [tri-family] Phoebe still in hospital

Stephanie,

Hope Phoebe is continuing to recover quickly from surgery!  We've had 
to watch Keren's CPAP mask closely, too, to make sure it's not rubbing 
her too much.  Kraig actually remade the whole headgear so that it 
would fit Keren's head (they didn't have anything her size).  We've 
been really happy with it, though we're still playing around with 
what's the best pressure--and actually now that she's had the jaw 
surgery we have to go in for another sleep study to see if she even 
needs it anymore....  Hope you're able to get it to work....

Loren (wife to Kraig, mom to Keren, T18, 5 mo. and counting! :) )
http://webpages.eng.wayne.edu/~ad6075


On Saturday, March 22, 2003, at 12:08 AM, Dr Julie Campbell wrote:

>   Tess now uses Bipap at night as her apnoeas
> have changed to central only.  We have just had a sleep study done on 
> Bipap
> and her specialist described it as "95% great and 5% weird".  Just 
> like my
> girl, nothing ordinary.  We have never had problems with the CPAP mask
> rubbing.  They do have to be fitted correctly and when the child is 
> very
> small this can be a problem.  Maybe we have just been lucky.
> Julie mumto Tess T18, 6 years
>

> ----- Original Message -----
> From: <heiskoni@xxxxxxxx>
> To: <tri-med@xxxxxxxxxxxxx>
> Sent: Wednesday, March 19, 2003 8:50 AM
> Subject: [tri-med] Re: [tri-family] Phoebe still in hospital
>
>
> Is Tess still on CPAP? That
> apparatus abrased the skin on the bridge of her nose so badly it's 
> still red
> and raw. --Stephanie



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