[tri-med] Re: [tri-family] Phoebe still in hospital

Hi Stephanie,
Glad to hear that Phoebe's surgery has been successful.  I'll continue to
pray for her full recovery.  Tess now uses Bipap at night as her apnoeas
have changed to central only.  We have just had a sleep study done on Bipap
and her specialist described it as "95% great and 5% weird".  Just like my
girl, nothing ordinary.  We have never had problems with the CPAP mask
rubbing.  They do have to be fitted correctly and when the child is very
small this can be a problem.  Maybe we have just been lucky.
Julie mumto Tess T18, 6 years
----- Original Message -----
From: <heiskoni@xxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Wednesday, March 19, 2003 8:50 AM
Subject: [tri-med] Re: [tri-family] Phoebe still in hospital


> Julie--thank you for your good wishes. Phoebe is now recovering from her
successful VSD operation and doing well. They just pulled the chest tube out
of her but not the  breathing tube yet. Is Tess still on CPAP? That
apparatus abrased the skin on the bridge of her nose so badly it's still red
and raw. --Stephanie
>
>
>
>                   Building ___ooOOoo__ Rainbows
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>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
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