[tri-med] Re: the vacation that wasn't





> Subject: [tri-med] Re: the vacation that wasn't
> Date: Tue, 17 Mar 2009 09:28:22 -0500
> From: fkaufman@xxxxxxxxxxxxxx
> To: tri-med@xxxxxxxxxxxxx
> 
> Holly, anything we can do?

Thanks so much for the offer, Faye.  I can't really think of anything right 
now.  It is bad enough when the kiddo is sick, but being so far away from home 
makes it hard.  At least Mike is here, too.  And, Morgan is getting better.  

Today they turned down some of the vent settings and cut his sedative in half.  
He is initiating breaths over the vent so he is moving in the right direction.  
I have been very impressed with the care he is receiving.  The drs and nurses 
are more attentive than they are at the hospital at home.  


?You have no right to argue with your Creator. You are
merely a clay pot shaped by a potter. 
The clay doesn?t ask, ?Why did 
you make me this way??? (Isaiah 45:9 CEV).



Holly ( Des Moines, IA) -- wife of Mike 
mom of Morgan (11 yrs. old) unbalanced translocation resulting in partial t18q 
and partial monosomy 9p 
dx'd with type 1 diabetes 03-17-08, enjoying the honeymoon--injecting levemir 
twice daily,novolog



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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