[tri-med] Re: t-13 w/ heart problems

Good Morning Susan-
  Thanks for your e-mail. Each an every one of you is so special and such a
great help. I wonder if it would have been easier if we didn't know but can't
turn back the hands of time. I'm so happy for you your daughter is doing well.
From the way the articles look T-13 has more severe symptoms. Is that what you
know about the difference? I think it's so amazing, one day you know nothing of
any of it and the next you're just digging for any info you can find and praying
there's hope attached.

We will be Brave and yes, at times we have to pretent. Especially for my little
2 yr old Maelin. She is just precious! and too our unborn baby boy.
 Talk to you soon.
Love, LouAnn Bieck
York, NE

Mom to Melissa, mom in law toTrent, Grammy to Maelin Ann 2 yrs, & baby boy T-13
due Oct.
Mom to Mick, 27 & TJ, 14


Glenn&Susan Hardy wrote:

> >>>>>  I'm new and I have a question re: my daughter's unborn baby boy. He's
> been diagnosed with T-13 w/ an extra something attached to 14. Her
> doctor sees lots of the problems associated. Kidneys & heart being the
> worst. They will do an Echo next week to know for sure. Has anyone had a
> baby with these problems that they we're able to correct with surgery?
> We are just beginning to find out about T-13 and realize there are so
> many different variations.<<<<<<
>
> Welcome Louanne, I did not have prenatal Dx so  I can't really answer your
> questions other then to say my daughter Rebecca t18m  was born with 4 holes
> in her heart and 3 of them closed by themselves in the first year. she has
> never had heart surgery, every baby is different and it really depends on
> what the defects are, hope the Echo is informative for your daughter
>
> Be Brave.  Even if you're not, pretend to be.  NO one can tell the
> difference
>
> Susan Mom to Rebecca Trisomy 18 mosaic almost 11 yrs old! and Mark ADD/LD
> almost 10!
> Ontario, Canada
> hardyboys@xxxxxxxxx
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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