[tri-med] Re: t-13 w/ heart problems

In a message dated 7/26/02 8:51:25 AM Eastern Daylight Time, 
hardyboys@xxxxxxxxx writes:


> >>>>>  I'm new and I have a question re: my daughter's unborn baby boy. He's
> been diagnosed with T-13 w/ an extra something attached to 14. Her
> doctor sees lots of the problems associated. Kidneys & heart being the
> worst. They will do an Echo next week to know for sure. Has anyone had a
> baby with these problems that they we're able to correct with surgery?
> We are just beginning to find out about T-13 and realize there are so
> many different variations.<<<<<<
> 

HI Louann,

My daughter Hannah is t13 mosaic and has a small asd which the doctor said 
will probably close on it's own by age 2.  We too were given a terribly grim 
diagnosis prenatally but glad we endured because she will be 2 in September 
and is just fine!  She has not shown any significant developmental delays and 
looks just like a normal two year old with no physical problems.

I am sorry that I don't have any info about kidneys but hope your daughter 
makes sure that the doctors do everything they can for your grandson.

Kristin - wife to Bryan, mom to 22 month old Hannah - t13 mosaic w/ 
Robertsonian translocation, and Brennan Joseph - born 3/30/02 in Atlanta, 
Georgia, USA
Come and see us at:  http://hannahclare.homestead.com/


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
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