[tri-med] Re: support groups

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Hi Vicki,=0D
 =0D
My son also has t14mosaic Kye is 4 and a half. We live in Australia, what
part of the world do you live in.=0D
Tanya =0D
 =0D
-------Original Message-------=0D
 =0D
From: Vicki Christensen=0D
Date: 23/05/2008 10:39:22 AM=0D
To: tri-med@xxxxxxxxxxxxx=0D
Subject: [tri-med] Re: support groups=0D
 =0D
Hi. I joined a support group of sorts about 2 years ago when Luke was 1 1=
/2.=0D
He also has a rare chromosome disorder and there are no t-14 kiddos in ou=
r=0D
area. I went to the group that was affiliated with our Early Start progra=
m.=0D
What I found is that although each child was unique, we all share so many=
 of=0D
the same issues as far as therapies, education, financial, even=0D
developmental. Sure, if there was a group for t-14 children, I would go i=
n a=0D
heartbeat, but the group I did attend has been very helpful.=0D
Vicki Christensen=0D
----- Original Message -----=0D
From: <SHAMOND73@xxxxxxx>=0D
To: <tri-med@xxxxxxxxxxxxx>=0D
Sent: Thursday, May 22, 2008 2:32 PM=0D
Subject: [tri-med] Re: support groups=0D
 =0D
 =0D
> Jason is going to be one next month and i feel ready and feel the need =
to=0D
> get involved in some type of support group, because he has such a rare=0D
> chromosome trisomy, i know there are no trisomy 17 groups in my=0D
> area..........should=0D
> i join a trisomy 21 support group, an 13/18 group?? .....a  CP support=0D
> group,=0D
> i don't know what type of group i should be looking for in  terns of th=
at=0D
> would have issues the most in common with jaon.=0D
>=0D
>=0D
> any advice or ideas?? how do i find a support group??=0D
>=0D
> Sharon=0D
> mom to Jason T 17p mosaic, 11 months old..... Lauren 3 yrs old, and  wi=
fe=0D
> to=0D
> Sam=0D
>=0D
>=0D
> **************Get trade secrets for amazing burgers. Watch "Cooking wit=
h=0D
> Tyler Florence" on AOL Food.=0D
> (http://food.aol.com/tyler-florence?video=3D4&?NCID=3Daolfod00030000000=
002)=0D
>=0D
>=0D
>                  Building ___ooOOoo__ Rainbows=0D
>                       www.trisomyonline.org=0D
>                  Families Helping Families On-line=0D
>=0D
 =0D
                  Building ___ooOOoo__ Rainbows=0D
                       www.trisomyonline.org=0D
                  Families Helping Families On-line=0D
 =0D
 =0D
 =0D
--=0D
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5:34 PM=0D
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