[tri-med] Re: support groups

I would go to S.O.F.T (Support Ortganization for Trisomy-18, 13 & Other Related 
Disorders). http://www.trisomy.org They might be able to help you find 
something more local. They are great. They were the Support organization we 
were hooked up with after our son, Christopher (full T-18) was born. We would 
have been lost without them. 
 
~Kandy K Goodrich
~wife of David
~mom of Brian (22), Joshua (17), Sarah (7), & Christopher (3-6-1997~1-26-1998, 
Trisomy-18)
 

----- Original Message ----
From: "SHAMOND73@xxxxxxx" <SHAMOND73@xxxxxxx>
To: tri-med@xxxxxxxxxxxxx
Sent: Thursday, May 22, 2008 2:32:37 PM
Subject: [tri-med] Re: support groups

Jason is going to be one next month and i feel ready and feel the need to  
get involved in some type of support group, because he has such a rare  
chromosome trisomy, i know there are no trisomy 17 groups in my  
area..........should 
i join a trisomy 21 support group, an 13/18 group?? .....a  CP support group, 
i don't know what type of group i should be looking for in  terns of that 
would have issues the most in common with jaon.


any advice or ideas?? how do i find a support group??

Sharon 
mom to Jason T 17p mosaic, 11 months old..... Lauren 3 yrs old, and  wife to 
Sam 


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