[tri-med] Re: still in the hospital

Holly, so sorry to hear that you are still on your forced vacation. Morgan
needs a better vacation that this! 

We'll continue to pray things turn around!


-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] On
Behalf Of Holly McCormick
Sent: Thursday, March 26, 2009 4:15 PM
To: tri-med
Subject: [tri-med] still in the hospital

Morgan is still in the PICU in Jackson, MS.  On Tues. we almost made it out
the door of the intensive care unit and onto the regular floor, almost.  He
started having a bunch of seizures and 02 needs went way up again, so back
into the ICU.  He was put back on bipap, didn't have to be intubated again.
The drs think maybe we just tried to make too many changes too fast and he
just wasn't ready for it.  Now, they are being very conservative, not
wanting to rush anything.  Morgan did have a very good day today.  He is
alert and looking around and responding to Mike and I.  Everyday he make
more forward progress.  The dr. did say that they would try to get him off
bipap again tomorrow.  

I guess Morgan is a bit of a celebrity here.  On Tues. when he was having
seizures I asked the nurse to step in to the room and a someone from
neurology just happened to be at the desk and said he would look in at him.
When he asked me what Morgan's underlying condition was and I told him
trisomy 18, he said, "I heard there was a trisomy 18 in the hospital.  We
hadn't been consulted so we didn't know where he was."  I guess the word is
out!  I think the drs are working very hard at getting Morgan better because
they see a kid with t18 who is 11 yrs.old and generally healthy must be
getting good care at home.  They ( the drs. here) don't want to be the ones
to jeopardize Morgan's health.  


"You have no right to argue with your Creator. You are
merely a clay pot shaped by a potter. 
The clay doesn't ask, 'Why did 
you make me this way?'" (Isaiah 45:9 CEV).



Holly ( Des Moines, IA) -- wife of Mike 
mom of Morgan (11 yrs. old) unbalanced translocation resulting in partial
t18q and partial monosomy 9p 
dx'd with type 1 diabetes 03-17-08, enjoying the honeymoon--injecting
levemir twice daily,novolog




                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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