[tri-med] Re: still in the hospital

Holly, While it stinks that Morgan is still in the hospital, I 'm glad to hear 
that he (and you and Mike) are educating and amazing a new set of medical 
professionals.  Nothing teaches better than first-hand experience!!  Hope 
Morgan makes it out of intensive care soon, and you can head home again!!  

Take care
Ceci, mom to angel Anna, T-18 
-------------------------------------------
From: Holly McCormick <hollyandms@xxxxxxx>
Subject: [tri-med] still in the hospital
Date: Thu, 26 Mar 2009 15:14:56 -0500

Morgan is still in the PICU in Jackson, MS.  On Tues. we almost made it out the 
door of the intensive care unit and onto the regular floor, almost.  He started 
having a bunch of seizures and 02 needs went way up again, so back into the 
ICU.  He was put back on bipap, didn't have to be intubated again.  The drs 
think maybe we just tried to make too many changes too fast and he just wasn't 
ready for it.  Now, they are being very conservative, not wanting to rush 
anything.  Morgan did have a very good day today.  He is alert and looking 
around and responding to Mike and I.  Everyday he make more forward progress.  
The dr. did say that they would try to get him off bipap again tomorrow.  

I guess Morgan is a bit of a celebrity here.  On Tues. when he was having 
seizures I asked the nurse to step in to the room and a someone from neurology 
just happened to be at the desk and said he would look in at him.  When he 
asked me what Morgan's underlying condition was and I told him trisomy 18, he 
said, "I heard there was a trisomy 18 in the hospital.  We hadn't been 
consulted so we didn't know where he was."  I guess the word is out!  I think 
the drs are working very hard at getting Morgan better because they see a kid 
with t18 who is 11 yrs.old and generally healthy must be getting good care at 
home.  They ( the drs. here) don't want to be the ones to jeopardize Morgan's 
health.  


“You have no right to argue with your Creator. You are
merely a clay pot shaped by a potter. 
The clay doesn’t ask, ‘Why did 
you make me this way?’” (Isaiah 45:9 CEV).



Holly ( Des Moines, IA) -- wife of Mike 
mom of Morgan (11 yrs. old) unbalanced translocation resulting in partial t18q 
and partial monosomy 9p 
dx'd with type 1 diabetes 03-17-08, enjoying the honeymoon--injecting levemir 
twice daily,novolog





------------------------------

From: Holly McCormick <hollyandms@xxxxxxx>
Subject: [tri-med] Re: [tri-family] taylor sick
Date: Thu, 26 Mar 2009 16:02:20 -0500

Gina,
So sorry to hear that Taylor is sick.  I will keep him in my thoughts and 
prayers.


“You have no right to argue with your Creator. You are
merely a clay pot shaped by a potter. 
The clay doesn’t ask, ‘Why did 
you make me this way?’” (Isaiah 45:9 CEV).



Holly ( Des Moines, IA) -- wife of Mike 
mom of Morgan (11 yrs. old) unbalanced translocation resulting in partial t18q 
and partial monosomy 9p 
dx'd with type 1 diabetes 03-17-08, enjoying the honeymoon--injecting levemir 
twice daily,novolog






------------------------------

From: "jwaite" <jwaite@xxxxxxxxxxxxx>
Subject: [tri-med] Re: still in the hospital
Date: Thu, 26 Mar 2009 17:06:46 -0400


----- Original Message ----- 
From: "Holly McCormick" <hollyandms@xxxxxxx>

> Morgan is still in the PICU in Jackson, MS.  On Tues. we almost made it 
> out the door of the intensive care unit and onto the regular floor, 
> almost.

Sorry to hear that you guys are still stuck out of town. It sure adds to the 
stress of the situation.
Glad to hear that Morgan is making progress though!
Hope that he busts the doors of the ICU  and gets stepped down into a reg 
room.......soon....soon......SOON.

Keeping the hospital celebrity in my thoughts.

Michelle mom to Alex (21, partial trisomy 14 mosaic) and Molly (18)
MichiganUSA 


------------------------------

Date: Thu, 26 Mar 2009 16:11:17 -0500 (GMT-05:00)
From: Gina Anderson <ghulce@xxxxxxxxxxxxx>
Subject: [tri-med] Re: still in the hospital

as i do work at a hosp , there is so much going around . and the sad thing is 
taylor was fine one min and sick the next. as ashleigh and rj had it and came 
home from work and mom said taylor is sick. He has a bad cough with it. hope 
morgan gets better soon . it sucks that you are so far away gina son taylor

-----Original Message-----
>From: Holly McCormick <hollyandms@xxxxxxx>
>Sent: Mar 26, 2009 3:14 PM
>To: tri-med <tri-med@xxxxxxxxxxxxx>
>Subject: [tri-med] still in the hospital
>
>Morgan is still in the PICU in Jackson, MS.  On Tues. we almost made it out 
>the door of the intensive care unit and onto the regular floor, almost.  He 
>started having a bunch of seizures and 02 needs went way up again, so back 
>into the ICU.  He was put back on bipap, didn't have to be intubated again.  
>The drs think maybe we just tried to make too many changes too fast and he 
>just wasn't ready for it.  Now, they are being very conservative, not wanting 
>to rush anything.  Morgan did have a very good day today.  He is alert and 
>looking around and responding to Mike and I.  Everyday he make more forward 
>progress.  The dr. did say that they would try to get him off bipap again 
>tomorrow.  
>
>I guess Morgan is a bit of a celebrity here.  On Tues. when he was having 
>seizures I asked the nurse to step in to the room and a someone from neurology 
>just happened to be at the desk and said he would look in at him.  When he 
>asked me what Morgan's underlying condition was and I told him trisomy 18, he 
>said, "I heard there was a trisomy 18 in the hospital.  We hadn't been 
>consulted so we didn't know where he was."  I guess the word is out!  I think 
>the drs are working very hard at getting Morgan better because they see a kid 
>with t18 who is 11 yrs.old and generally healthy must be getting good care at 
>home.  They ( the drs. here) don't want to be the ones to jeopardize Morgan's 
>health.  
>
>
>“You have no right to argue with your Creator. You are
>merely a clay pot shaped by a potter. 
>The clay doesn’t ask, ‘Why did 
>you make me this way?’” (Isaiah 45:9 CEV).
>
>
>
>Holly ( Des Moines, IA) -- wife of Mike 
>mom of Morgan (11 yrs. old) unbalanced translocation resulting in partial t18q 
>and partial monosomy 9p 
>dx'd with type 1 diabetes 03-17-08, enjoying the honeymoon--injecting levemir 
>twice daily,novolog
>
>
>
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>


------------------------------

Date: Fri, 27 Mar 2009 11:26:03 +1100
From: Jocelyn <jknowd@xxxxxxxxxx>
Subject: [tri-med] Re: taylor  sick

Hope Taylor recovers quickly Gina.

At 07:04 AM 27/03/2009, you wrote:
>just to let everyone now that taylor has 
>pneumonia. Dcotor did'nt tell me when i took him 
>in on monday as all of us have had the coughing 
>and stuff , will taylor was'nt any better to day 
>so gram brought him back now he is on a cough 
>med so we will see how he does with that. i 
>posted this way as  my compter is down and will 
>not be fix until apirl gina son taylor
>
>-----Original Message-----
> >From: Holly McCormick <hollyandms@xxxxxxx>
> >Sent: Mar 17, 2009 8:48 PM
> >To: tri-med <tri-med@xxxxxxxxxxxxx>
> >Subject: [tri-med] update
> >
> >Today was a good day for Morgan. When we arrived at the hospital this
> >morning the docs told us that his xrays today were much better than the
> >ones from yesterday. They were also happy to report that his lungs
> >sounded much clearer, he actually had some air movement. All his lab
> >work continues to be good so it is just a matter of clearing the
> >pneumonia out of his lungs. The culture they sent out on Sat. grew a
> >bug that is common in pneumonia so they know how to fight it, continue
> >the current antibiotics.
> >
> >He had one tiny step forward today.
> >In the afternoon the dr. decided to turn off the paralytic he was on.
> >The paralytic keeps him still while on the vent so the vent can do all
> >the work. Once the paralytic is off Morgan can move again. He remains
> >sedated, but he did turn his head to our voices several times and he
> >tried oh so hard to open his eyes. But, they are so heavy, he just
> >couldn't quite do it. This is a good step in the right direction. His
> >main nurse thinks he will probably remain on the vent for a couple more
> >days as they don't just turn it off, but have to wean him off. I have
> >no idea how long we will be in Jackson, MS. I want to go home.
> >
> >“You have no right to argue with your Creator. You are
> >merely a clay pot shaped by a potter.
> >The clay doesn’t ask, ‘Why did
> >you make me this way?’” (Isaiah 45:9 CEV).
> >
> >
> >
> >Holly ( Des Moines, IA) -- wife of Mike
> >mom of Morgan (11 yrs. old) unbalanced 
> translocation resulting in partial t18q and partial monosomy 9p
> >dx'd with type 1 diabetes 03-17-08, enjoying 
> the honeymoon--injecting levemir twice daily,novolog
> >
> >
> >
> >
> >                  Building ___ooOOoo__ Rainbows
> >                       www.trisomyonline.org
> >                  Families Helping Families On-line
> >
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>
>
>No virus found in this incoming message.
>Checked by AVG - www.avg.com
>Version: 8.0.238 / Virus Database: 
>270.11.30/2025 - Release Date: 03/26/09 20:05:00



Jocelyn,  wife to Frank,  Mother to Ian, Gillian 
and Susan, Nanna to Carly 21  Mathew 
20,  Ashleigh 19, Alex 17,  and Tess  (Trisomy 
18,) age 12 yrs,  & Benny the Maltese, plus one 
amazing DIL and two amusing SIL's of whom I'm 
very fond, and their extended family who are too many to list here.   


------------------------------

Date: Thu, 26 Mar 2009 20:37:49 -0500
Subject: [tri-med] Re: still in the hospital
From: Colleen Sibthorp <sibthorp1@xxxxxxxxx>

Hang in there Holly.  Your doing a great job.  Just a few more days, and all
of you can go home.

Colleen, Momma to angel Rowan Margaret.


On 3/26/09 3:14 PM, "Holly McCormick" <hollyandms@xxxxxxx> wrote:

> Morgan is still in the PICU in Jackson, MS.  On Tues. we almost made it out
> the door of the intensive care unit and onto the regular floor, almost.  He
> started having a bunch of seizures and 02 needs went way up again, so back
> into the ICU.  He was put back on bipap, didn't have to be intubated again.
> The drs think maybe we just tried to make too many changes too fast and he
> just wasn't ready for it.  Now, they are being very conservative, not wanting
> to rush anything.  Morgan did have a very good day today.  He is alert and
> looking around and responding to Mike and I.  Everyday he make more forward
> progress.  The dr. did say that they would try to get him off bipap again
> tomorrow.  
> 
> I guess Morgan is a bit of a celebrity here.  On Tues. when he was having
> seizures I asked the nurse to step in to the room and a someone from neurology
> just happened to be at the desk and said he would look in at him.  When he
> asked me what Morgan's underlying condition was and I told him trisomy 18, he
> said, "I heard there was a trisomy 18 in the hospital.  We hadn't been
> consulted so we didn't know where he was."  I guess the word is out!  I think
> the drs are working very hard at getting Morgan better because they see a kid
> with t18 who is 11 yrs.old and generally healthy must be getting good care at
> home.  They ( the drs. here) don't want to be the ones to jeopardize Morgan's
> health.  
> 
> 
> „You have no right to argue with your Creator. You are
> merely a clay pot shaped by a potter.
> The clay doesn‚t ask, ŒWhy did
> you make me this way?‚‰ (Isaiah 45:9 CEV).
> 
> 
> 
> Holly ( Des Moines, IA) -- wife of Mike
> mom of Morgan (11 yrs. old) unbalanced translocation resulting in partial t18q
> and partial monosomy 9p
> dx'd with type 1 diabetes 03-17-08, enjoying the honeymoon--injecting levemir
> twice daily,novolog
> 
> 
> 
> 
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
> 



------------------------------

End of tri-med Digest V8 #92
****************************


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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