[tri-med] Re: still in the hospital

Hang in there Holly.  Your doing a great job.  Just a few more days, and all
of you can go home.

Colleen, Momma to angel Rowan Margaret.


On 3/26/09 3:14 PM, "Holly McCormick" <hollyandms@xxxxxxx> wrote:

> Morgan is still in the PICU in Jackson, MS.  On Tues. we almost made it out
> the door of the intensive care unit and onto the regular floor, almost.  He
> started having a bunch of seizures and 02 needs went way up again, so back
> into the ICU.  He was put back on bipap, didn't have to be intubated again.
> The drs think maybe we just tried to make too many changes too fast and he
> just wasn't ready for it.  Now, they are being very conservative, not wanting
> to rush anything.  Morgan did have a very good day today.  He is alert and
> looking around and responding to Mike and I.  Everyday he make more forward
> progress.  The dr. did say that they would try to get him off bipap again
> tomorrow.  
> 
> I guess Morgan is a bit of a celebrity here.  On Tues. when he was having
> seizures I asked the nurse to step in to the room and a someone from neurology
> just happened to be at the desk and said he would look in at him.  When he
> asked me what Morgan's underlying condition was and I told him trisomy 18, he
> said, "I heard there was a trisomy 18 in the hospital.  We hadn't been
> consulted so we didn't know where he was."  I guess the word is out!  I think
> the drs are working very hard at getting Morgan better because they see a kid
> with t18 who is 11 yrs.old and generally healthy must be getting good care at
> home.  They ( the drs. here) don't want to be the ones to jeopardize Morgan's
> health.  
> 
> 
> „You have no right to argue with your Creator. You are
> merely a clay pot shaped by a potter.
> The clay doesn‚t ask, ŒWhy did
> you make me this way?‚‰ (Isaiah 45:9 CEV).
> 
> 
> 
> Holly ( Des Moines, IA) -- wife of Mike
> mom of Morgan (11 yrs. old) unbalanced translocation resulting in partial t18q
> and partial monosomy 9p
> dx'd with type 1 diabetes 03-17-08, enjoying the honeymoon--injecting levemir
> twice daily,novolog
> 
> 
> 
> 
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
> 


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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