[tri-med] Re: still in the hospital

as i do work at a hosp , there is so much going around . and the sad thing is 
taylor was fine one min and sick the next. as ashleigh and rj had it and came 
home from work and mom said taylor is sick. He has a bad cough with it. hope 
morgan gets better soon . it sucks that you are so far away gina son taylor

-----Original Message-----
>From: Holly McCormick <hollyandms@xxxxxxx>
>Sent: Mar 26, 2009 3:14 PM
>To: tri-med <tri-med@xxxxxxxxxxxxx>
>Subject: [tri-med] still in the hospital
>
>Morgan is still in the PICU in Jackson, MS.  On Tues. we almost made it out 
>the door of the intensive care unit and onto the regular floor, almost.  He 
>started having a bunch of seizures and 02 needs went way up again, so back 
>into the ICU.  He was put back on bipap, didn't have to be intubated again.  
>The drs think maybe we just tried to make too many changes too fast and he 
>just wasn't ready for it.  Now, they are being very conservative, not wanting 
>to rush anything.  Morgan did have a very good day today.  He is alert and 
>looking around and responding to Mike and I.  Everyday he make more forward 
>progress.  The dr. did say that they would try to get him off bipap again 
>tomorrow.  
>
>I guess Morgan is a bit of a celebrity here.  On Tues. when he was having 
>seizures I asked the nurse to step in to the room and a someone from neurology 
>just happened to be at the desk and said he would look in at him.  When he 
>asked me what Morgan's underlying condition was and I told him trisomy 18, he 
>said, "I heard there was a trisomy 18 in the hospital.  We hadn't been 
>consulted so we didn't know where he was."  I guess the word is out!  I think 
>the drs are working very hard at getting Morgan better because they see a kid 
>with t18 who is 11 yrs.old and generally healthy must be getting good care at 
>home.  They ( the drs. here) don't want to be the ones to jeopardize Morgan's 
>health.  
>
>
>“You have no right to argue with your Creator. You are
>merely a clay pot shaped by a potter. 
>The clay doesn’t ask, ‘Why did 
>you make me this way?’” (Isaiah 45:9 CEV).
>
>
>
>Holly ( Des Moines, IA) -- wife of Mike 
>mom of Morgan (11 yrs. old) unbalanced translocation resulting in partial t18q 
>and partial monosomy 9p 
>dx'd with type 1 diabetes 03-17-08, enjoying the honeymoon--injecting levemir 
>twice daily,novolog
>
>
>
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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