[tri-med] Re: so scared

they saw it on her spinal mri.  they gave me a dvd of the mri which i now 
have to take to oncology so they can read what and where it is.  i should 
know more on monday.
thanks
jude, mom to derek-22, kelsey-20
and kameron-11-full trisomy 18 (hanging out so i will never be an empty 
nester)
golden, colorado usa
http://www.judewolpert.com
http://flickr.com/photos/judewolpert/
http://home.comcast.net/~jfwolpert2/wsb/html/view.cgi-home.html-.html
----- Original Message ----- 
From: "Katy Roberts" <basil1_2000@xxxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Friday, June 13, 2008 1:07 PM
Subject: [tri-med] Re: so scared


> Sorry to hear your news Jude,
> Thats so bad. If you get the time or energy find out who left the message 
> and wipe the floor with them because maybe they didn't even realise what 
> they were doing is just so wrong - it may get them to think twice next 
> time.
> Did the doctors show the xrays or scans to you? I ask because I have just 
> come back yesterday from seeing the spinal surgeon and neurologist with my 
> son and they said they could see a weird bit of extra bone or something on 
> one of the vertebrae towards the lower end of his spine near where he has 
> scoliosis. They said not to worry and they would keep an eye on it and see 
> him in a year!!??!! I saw the xray and could see what they mean but it was 
> all a bit blurry.
> Where on the spine did they find Kam's fibrolipoma is it accessable for a 
> biopsy?
>
> Katy son t8 mosaic.

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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