[tri-med] Re: so scared

Sorry to hear your news Jude,
Thats so bad. If you get the time or energy find out who left the message and 
wipe the floor with them because maybe they didn't even realise what they were 
doing is just so wrong - it may get them to think twice next time. 
Did the doctors show the xrays or scans to you? I ask because I have just come 
back yesterday from seeing the spinal surgeon and neurologist with my son and 
they said they could see a weird bit of extra bone or something on one of the 
vertebrae towards the lower end of his spine near where he has scoliosis. They 
said not to worry and they would keep an eye on it and see him in a year!!??!! 
I saw the xray and could see what they mean but it was all a bit blurry.
Where on the spine did they find Kam's fibrolipoma is it accessable for a 
biopsy?

Katy son t8 mosaic.



----- Original Message ----
From: Terre Krotzer <terrek@xxxxxxxxxxx>
To: tri-med@xxxxxxxxxxxxx
Sent: Friday, 13 June, 2008 6:48:43 AM
Subject: [tri-med] Re: so scared

Jude:

Oh my gosh. That is scary. Have you learned anything at all
through online research, etc? When do you get to see someone that
can tell you something?

{{{hugs}}}

All the best,
Terre
=20
Mom to Kevin - 22, Keith - 19, Kenny - 15, Korey - 14, and
precious
Krissy (better known as Princess Krissy!) (T18) - 8 years - with
a smile that lights up the world!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Terre Krotzer
terre@xxxxxxxxxxxx
=20
" There are two ways of spreading light; to be the candle or the
mirror that reflects it."=20
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Show your family how much you care...
Get your Will and Living Will in place today...=20
www.krotzers.com


-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx
[mailto:tri-med-bounce@xxxxxxxxxxxxx] On Behalf Of Jude Wolpert
Sent: Thursday, June 12, 2008 8:03 PM
To: tri-med-freelists
Subject: [tri-med] so scared


kam had a spinal mri in april to see if she had a tethered spinal
cord and=20
that was causing her extreme constipation.  she didn't.
the mri did show a fibrolipoma on her spine (i posted before but
no one=20
really knew anything about it).
her ped set us up for a consult with nuero surgery as they always
like to=20
take out the fibrous growth.
today i got a voice mail from nuero surgery telling me i should
really be=20
seeing oncology!!!!!!!!!!!

i am in shock
jude, mom to derek-22, kelsey-20
and kameron-11-full trisomy 18 (hanging out so i will never be an
empty=20
nester)
golden, colorado usa
http://www.judewolpert.com http://flickr.com/photos/judewolpert/
http://home.comcast.net/~jfwolpert2/wsb/html/view.cgi-home.html-.
html=20

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line


      __________________________________________________________
Sent from Yahoo! Mail.
A Smarter Email http://uk.docs.yahoo.com/nowyoucan.html
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: