[tri-med] Re: so scared

(((((((((((((((Jude)))))))))))))))))

Keeping you and Kammie in my thoughts, 


Susan Mom to Rebecca T18 M 6/6/91-5/2/06 and Mark ADD/LD age 15



-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] On
Behalf Of Jude Wolpert
Sent: Thursday, June 12, 2008 11:03 PM
To: tri-med-freelists
Subject: [tri-med] so scared

kam had a spinal mri in april to see if she had a tethered spinal cord and 
that was causing her extreme constipation.  she didn



't.
the mri did show a fibrolipoma on her spine (i posted before but no one 
really knew anything about it).
her ped set us up for a consult with nuero surgery as they always like to 
take out the fibrous growth.
today i got a voice mail from nuero surgery telling me i should really be 
seeing oncology!!!!!!!!!!!

i am in shock
jude, mom to derek-22, kelsey-20
and kameron-11-full trisomy 18 (hanging out so i will never be an empty 
nester)
golden, colorado usa
http://www.judewolpert.com
http://flickr.com/photos/judewolpert/
http://home.comcast.net/~jfwolpert2/wsb/html/view.cgi-home.html-.html 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line


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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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