[tri-med] Re: so scared

Jude,

Please know that Kameron and the family will be in my thoughts and prayers.
I also pray that you get the immediate help you need to get to the bottom of
what is going on and for the doctors to be actively finding treatment!

Hang in there!

Ruth, wife to Rudy, mom to Brendon (24), Scott (20), Joshua (17), Matthew
(09/13/01-10/24/06), Rudy (3 1/2) & Alyssa (18 mo.)

http://members.cox.net/t18mom/Matthew%20Web.shtml

Character cannot be developed in ease and quiet. Only through experience of
trial and suffering can the soul be strengthened, ambition inspired, and
success achieved. ~Hellen Keller



-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] On
Behalf Of Jude Wolpert
Sent: Thursday, June 12, 2008 8:03 PM
To: tri-med-freelists
Subject: [tri-med] so scared

kam had a spinal mri in april to see if she had a tethered spinal cord and 
that was causing her extreme constipation.  she didn't.
the mri did show a fibrolipoma on her spine (i posted before but no one 
really knew anything about it).
her ped set us up for a consult with nuero surgery as they always like to 
take out the fibrous growth.
today i got a voice mail from nuero surgery telling me i should really be 
seeing oncology!!!!!!!!!!!

i am in shock
jude, mom to derek-22, kelsey-20
and kameron-11-full trisomy 18 (hanging out so i will never be an empty 
nester)
golden, colorado usa
http://www.judewolpert.com
http://flickr.com/photos/judewolpert/
http://home.comcast.net/~jfwolpert2/wsb/html/view.cgi-home.html-.html 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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