[tri-med] Re: sleep apnea in Tri-18 babies

I think Tess parents had to buy their own CPAP machine here in 
Sydney, Australia, but had a recommendation from the Sleep study 
unit. The company is called Resmed, situated at Seven Hills, NSW 
Australia. I think Tess got hers at about 8 weeks old.

At 01:34 PM 28/08/2006, you wrote:
>Hi, my son is 4 months old and has apnea spells. He is in the hosptial
>using a cpap machine for this and it really helps. The problem is that
>the hospital keeps telling me that the cpap machine is not approved for
>infant home use, so I cant get one. I dont want to put him in a nursing
>home just for the machine but he needs it at night for the apnea and to
>sleep well to gain weight. Any suggestions? He is also on 3/4 liter of
>o2 during the day and a apnea monitor. But they only seems to happen at
>night for now. He does have them all the time when he gets sick, this is
>how I know something is wrong but It takes forever to get anyone to
>treat him after they see the trisomy on his records from other
>hospitals? Any suggestions on this too?
>thanks
>lonely uninformed mom of Amos with Tri-18 and 13 other kids who are
>beautiful and healthy
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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