[tri-med] Re: sleep apnea in Tri-18 babies

hello????  you can not be too uniformed if you have 13 other kis!!!  give it 
up and give us the scoop dear.
jude, mom to derek-20 (still searching for a focus), kelsey-18 (going to unm 
to be a pt)
and kameron-9-full t18 (hanging out so i will never be an empty nester)
golden, colorado usa
http://www.judewolpert.com
http://home.comcast.net/~jfwolpert2
http://judewolpert.com/v-web/b2/
----- Original Message ----- 
From: "Kelly Rosberg" <rosberg2@xxxxxxxxx>
To: <Tri-Med@xxxxxxxxxxxxx>
Sent: Sunday, August 27, 2006 9:34 PM
Subject: [tri-med] sleep apnea in Tri-18 babies


> Hi, my son is 4 months old and has apnea spells. He is in the hosptial
> using a cpap machine for this and it really helps. The problem is that
> the hospital keeps telling me that the cpap machine is not approved for
> infant home use, so I cant get one. I dont want to put him in a nursing
> home just for the machine but he needs it at night for the apnea and to
> sleep well to gain weight. Any suggestions? He is also on 3/4 liter of
> o2 during the day and a apnea monitor. But they only seems to happen at
> night for now. He does have them all the time when he gets sick, this is
> how I know something is wrong but It takes forever to get anyone to
> treat him after they see the trisomy on his records from other
> hospitals? Any suggestions on this too?
> thanks
> lonely uninformed mom of Amos with Tri-18 and 13 other kids who are
> beautiful and healthy
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
> 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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