[tri-med] Re: sleep apnea in Tri-18 babies

Hi Kelly:

My daughter Krissy had sleep apnea. When she was 3 months old we
tried her on a cpap machine. They told us the same thing, that it
was not approved for home use for infants. There was no way I was
not going to have Krissy home with me. I can't even imagine that.
I believe there are folks on this list that have kids that
used/use a cpap but I'm not sure how young they were put on it.

With Krissy she simply wouldn't tolerate the cpap so we made a
decision to have her trached. It was the best decision ever -
hard to believe now that at the time it was a difficult decision.
Today she is 6 years old, happy, healthy and the Princess of the
House!

She is still trached because her airway is still a bit floppy. We
aren't willing to try decanulating her (having the trach removed)
because with the trach she is safe and healthy. It really is not
a big deal caring for the trach and she doesn't know any
different.

All the best,
Terre
=20
Mom to Kevin - 20, Keith - 17, Kenny - 13, Korey - 12, and
precious
Kristina Rachel (T18) - 6 years - with a smile that lights up the
world!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Terre Krotzer
terre@xxxxxxxxxxxx
=20
" There are two ways of spreading light; to be the candle or the
mirror that reflects it."=20
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Show your family how much you care...
Get your Will and Living Will in place today...=20
www.krotzers.com




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