[tri-med] sleep apnea in Tri-18 babies

Hi, my son is 4 months old and has apnea spells. He is in the hosptial
using a cpap machine for this and it really helps. The problem is that
the hospital keeps telling me that the cpap machine is not approved for
infant home use, so I cant get one. I dont want to put him in a nursing
home just for the machine but he needs it at night for the apnea and to
sleep well to gain weight. Any suggestions? He is also on 3/4 liter of
o2 during the day and a apnea monitor. But they only seems to happen at
night for now. He does have them all the time when he gets sick, this is
how I know something is wrong but It takes forever to get anyone to
treat him after they see the trisomy on his records from other
hospitals? Any suggestions on this too?
thanks
lonely uninformed mom of Amos with Tri-18 and 13 other kids who are
beautiful and healthy

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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