[tri-med] Re: skin conditions

J had horrible eczema until we found out about his allergies and eliminated 
those foods.  I have it on my hands and it cracks and bleeds, it's terrible.  
The thing that works best of me is a compound the pharmacy makes of petroleum 
jelly and hydrocortisone.
   
  J also has funky toenails too, only his are paper thin on the smaller toes 
and rock hard on his big toe.  The smaller nails grow around the front of his 
toes and the big nail grows straight up.  They are really difficult to trim.  
His fingernails are totally normal.  Crazy, huh?
   
  Wendi, mom to Jackson, trisomy 4p inverted duplication
   
  
verheyen@xxxxxxxxxxx wrote:
  Isn't that weird...Cody's toe nails are like ripples in the beach sand and 
very thick. His big toes are the worst with the rest of his toe nails very, 
very, very small. His hands are also very and I mean very bad this winter. We 
went to the dermatologist last week and we will be going back next week. He is 
a mess and never complains but I know that it hurts because I also as a child 
would have the cracks and the bleeding. So I can feel for these guys...
Have a great day
Tracy mom to Cody (Trisomy 9p)
-------------- Original message -------------- 
From: "jwaite" 

> 
> ----- Original Message ----- 
> From: "Mark & Jayne Wright" 
> 
> Laurie wrote: 
> > {Brianna's is Ectodermal Dysplasia........her skin on 
> > the knee's and elbow's just keeps building up. It does not exfoliate 
> > itself. } 
> 
> Jayne wrote: 
> > I'm wondering if that is what Nicholas has on the tops of some of his 
> > >toes. It's exactly like that! Someone described it like skin on an 
> > >elephant. Weird! 
> 
> Since early toddlerhood Alex has had eczema. It would flare up now and then 
> and a prescription cream would work. 
> 
> Alex has also been diagnosed with allergies and with allergy induced asthma. 
> The is most like a correlation to the eczema and allergies. 
> 
> A year or so ago Alex's hands REALLY and I do mean severely flared up with 
> eczema. Cracking, bleeding, build-up of scabby, tough, hard skin. 
> We are still battling it. I finally took him to a dermatologist and when all 
> his tricks weren't working they started him on the UV-B light therapy. 
> 
> It got better, then they backed the 2 per week treatment to once per week 
> and they flared up again. Now Alex is back on the 2 per week therapy and 
> they are clearing up again. This is in addition to a prescription cream 
> application 2 times per day and a prescription ointment application at 
> night. 
> 
> The dermo told us that this is NOT like putting the hands in sun. I'm 
> guessing that's true because I had Alex 'soaking' his hands in the sun 
> trying to clear it up before we gave in and went to the dermo. Maybe I need 
> to investigate what the 'B' part of the therapy is...... 
> 
> Alex also has the finger and toe nails of concrete. It's very difficult to 
> cut the things. And his finger nails are very ridged (not rigid but have 
> raised bumpy area like the sand from waves in the water) but not so much the 
> toes. 
> 
> Michelle mom to Alex (19, partial trisomy 14 mosaic) and Molly (16) 
> MichiganUSA 
> 
> 
> Building ___ooOOoo__ Rainbows 
> www.trisomyonline.org 
> Families Helping Families On-line 
> 

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