[tri-med] Re: shadowing in NICU

How sad.
Some babies won't live, it is a fact of life.
Some do and those are truly the lucky ones.  Lucky to have good
doctors who are willing to listen to the parents, lucky to have good
parents who are willing to give the baby a chance to be born, and just
plain lucky to not have life threatening problems.

Sadly, I think a baby must have *all those things... not just any one
of them.  We can control the parental decisionsl and we can choose the
dr, but in the end, it isn't always our decision if our baby will
survive.

Thanks for sharing your experience Annee.  Good luck with your chosen
career... maybe one day you will be in a place where you can slip
those parents a website or two for a little more insight to our world.

Debbie, mom to Claire (t18)

On 12/15/06, Annee122884@xxxxxxx <Annee122884@xxxxxxx> wrote:
> I had the opportunity to shadow a couple of nurse practitioners and
> neonatologists in the Neonatal ICU yesterday at Riley Hospital for Children
> (Indianapolis). Along with seeing and learning tons, and concreting my 
> decision  to
> become an NP, I saw some trisomy babes.  I really had to keep my mouth  shut
> (maybe I shouldn't have) while the doctors were rounding and telling  the 
> parents
> to expect their children to die any day because trisomies were not  viable.
> Argh! One was a T21 with a wacky heart (I don't remember the name of the
> syndrome, but there is no septum between the ventricles or atria; one large
> chamber); the second was a cherub-faced T18 with pulmonary stenosis and  
> pulmonary
> hypertension; the third, was a T2 with deletion of the long arm of 4  (hope
> that's right; the numbers really mess me up, still!).
> Anyway,  I wanted to share my experience :)
>
> : ) Annee , SNII
> Future NNP
> Oh,  how the little things
> Strengthen my tiny wings,
> Help me to take on the  world,
> When you love me,
> There's nothing I wouldn't try,
> I might even  fly.
> -Sarah Groves, All Right Here
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>


-- 
Sleep is for Pansies.

Faith sees the invisible, believes the incredible and receives the impossible!
If you want the rainbow, you gotta put up with the rain.
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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