[tri-med] Re: results for kam


At 12:53 PM 29/02/2008, you wrote:
>well she doesn't have a tethered spinal cord.

Well that's good news!


>however the biopsy samples the gi dr (you remember the a ...guy?) took
>weren't deep enough to say whether she has hirshsprung's disease or not.  he
>has supposedly never had this happen in 5 years...yeah right!


How frustrating for you, poor Kam. I hope you can find a more 
sympathetic gi doc.

>i am not making her do it again.

Don't blame you!


>he is in total miralax management mode (which doesn't work for kam as it
>gives her extreme gas) so i am looking for a new gi specialist!
>
>anybody have any other low colonic motility solutions they have been thru?
>thanks
>jude, mom to derek-21, kelsey-19
>and kameron-10-full trisomy 18 (hanging out so i will never be an empty
>nester)
>golden, colorado usa
>http://www.judewolpert.com
>http://flickr.com/photos/judewolpert/
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>
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>27/02/2008 4:34 PM

Jocelyn, loving Nanna to Tess with Trisomy 18, age 11 years
. 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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