[tri-med] results for kam

well she doesn't have a tethered spinal cord.

however the biopsy samples the gi dr (you remember the a ...guy?) took 
weren't deep enough to say whether she has hirshsprung's disease or not.  he 
has supposedly never had this happen in 5 years...yeah right!

i am not making her do it again.

he is in total miralax management mode (which doesn't work for kam as it 
gives her extreme gas) so i am looking for a new gi specialist!

anybody have any other low colonic motility solutions they have been thru?
thanks
jude, mom to derek-21, kelsey-19
and kameron-10-full trisomy 18 (hanging out so i will never be an empty 
nester)
golden, colorado usa
http://www.judewolpert.com
http://flickr.com/photos/judewolpert/

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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