[tri-med] Re: respite . . . Faren

Morgan gets his respite thru his waiver service.  Basically, we can use any of 
the local respite services.  We have chosen to have someone come to our house 
to stay with him when we want to go out.  He also goes to a respite center once 
a month for boys' night, he spends the night for that.  We have to use respite 
in order for Morgan to continue to qualify for his waiver.  He is currently on 
the mr waiver, but we are switching to the brain injury waiver.  There is a 
huge difference in the amount of $ you can get.  With the mr waiver you can get 
a lifetime amount of $5,000 for home and vehicle modification.  Well, we used 
that all up getting a lift in our garage.  On the b.I. waiver there is a cap of 
$6,000 a year for home and vehicle modification and $6,000 a year for medical 
needs and equipment, which includes respite hours.  The b.I. waiver has fewer 
respite hours than m.r., but we never come close to using them all anyway.


Holly -- wife of Mike, mom of Morgan Jubal (9 years)-partial t18q, partial 
monosomy 9p, unbalanced translocation
grandma of William Max
mommy to Clyde & Cleo (kitties)
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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